<t>After 7 years of hard work, sweat and tears he can finally move his fingers and use them. Untill now there was a tiny bit of muscle tension. He had surgery about 2 monts or so and now he could grape a ball and USE his fingers. This is so new that i'm a little bit (much) emotional about it. This i...

<t>hi, <br/> my daughter has the same problem. We use hydrocison 1% discribed by skintherapist. We also don't put her in the bath to often. Every other day. And when we do, we put BALNEUM HERMAL PLUS (antipuric medicinal bath oil) inside. Makes the skin smooth. to dry we put the towel around her and...

<t>i read the message about when they start telling to others. and ask questions. EVERY CHILD HAS HIS OWN time to start realise that they are different with the arms,when they do tell them as it is. tell them what happend. till 7 years they do not want to know the details. some will listen for 2 min...

My babies walk fast in some way. Wesley was only 10 month old when he started walking.
Monique

<t>Hi Francine, <br/> the baby is doing fine. there is no doubt anymore of her being diabetic. Her face is clearing up!!!!!! She is now one year old and SHE IS WALKING ALREADY for ONE month. We are also doing fine. There is still a lot to do in the house. And by the way, wesley only had one surgery ...

<t>Hello, <br/> Wesley is almost there. Still 7 days to go in his bandage and than we hope he will get out of it. He went to surgery on the 18th of July this year to have an osteomy on the underarm (wrist). He has no function in his wrist, hand and fingers. But there are muscles there which can work...

<t>Hi, <br/> my son had have a release at the shoulder and just a osteotomy. Amazingly, he is still in his bandage but he can alrady squeeze his fingers. Never did this before. So looks good. <br/> You have to ask your self what are the profits of this surgery, what will be the gain, only cosmetic o...

<t>my son did the same thing. We wearned him several time. We tried to find out why he was doing so. He did it because he was angry at his fingers which didn't work and do what he wanted so he wanted to punsish them. We told him very very often that he had to be gentle, that the fingers wanted to wo...

<t>hi<br/> My own experience with it: it's frustrating but it will pass. What i did is to let him know he also has a left arm (BPI one)by playing with it, caressing it, put a bracelet with rinkels (noisethings) on it, put the hand in bowls filled with beans, rice and stuff, let him play with shaving...

<t>Just getting my mind a little bit clear. tomorrow is the big day for Wesley. He is going to have a osteomy rotation at his arm. Wonder what it will bring back. Hopes are more function in his fingers. there is some movement and strenght but so little. He has to work it against gravity. Now he will...