I do that with my left knee too.. well I used to (until I was paralyzed in 2004). It was how I did ponytails and braids and things like that.
Works really well!
What do your children do "their way"?
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
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F-Litz
- Posts: 970
- Joined: Fri May 26, 2006 6:53 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
- Location: Ambler, PA
Re: What do your children do "their way"?
ok now we're getting down to the nitty gritty....
Maia used to eat grapes with her feet.... I used to yell STOP - here's a wet wipe to wash your toes first!! hahaha
I WISH I video'd that... it was so cute and she stopped doing it since.
Maia used to eat grapes with her feet.... I used to yell STOP - here's a wet wipe to wash your toes first!! hahaha
I WISH I video'd that... it was so cute and she stopped doing it since.
Re: What do your children do "their way"?
lets see...
-he braces his coloring book on the floor with his right foot and colors with left hand
-plays video games with left thumb and pinky for ds and leapster ,upside down for xbox 360
-ties shoes since 3 y/o w/ left hand
-pulls undies up over thighs, then does this little stoop and pop move that gets them all the way up (cute)
-laser tag, wears laser target on waist w/belt or thigh
He has always figured out his way, may take a few tries,but he gets it and rarely asks for help.
-he braces his coloring book on the floor with his right foot and colors with left hand
-plays video games with left thumb and pinky for ds and leapster ,upside down for xbox 360
-ties shoes since 3 y/o w/ left hand
-pulls undies up over thighs, then does this little stoop and pop move that gets them all the way up (cute)
-laser tag, wears laser target on waist w/belt or thigh
He has always figured out his way, may take a few tries,but he gets it and rarely asks for help.
Re: What do your children do "their way"?
Re: Shampoo
I stand on my left leg and prop my right foot on my left knee. (Basically, I look like a flamingo) Doing that causes my right leg to make a ledge which I then squeeze my shampoo onto. From there, I use my non-BPI to take small portions of shampoo to apply to different parts of my hair/head. Scrub, lather, rinse! Repeat with conditioner.
It takes balance & some practice. If I'm feeling particularly wobbly, I'll place my right foot on the edge of the bathtub or on a chair instead of my left leg. (Fortunately most kids have really good balance and childhood is all about practice and experimenting.)
Other things I do:
When I write, I have to hold down the paper with my pinky, otherwise it moves. I haven't figured out how to curl my hair one-handed yet, but I'm working on it! I can and do straighten my hair, though. I open water/soda bottles with my teeth - makes my parents cringe everytime, but it works. When shaving/putting on deodorant, I prop my RBPI arm on a wall so that that area is easier to reach.
Agreed with clothes - BPI arm goes in first. With shirts, I usually scrunch up the sleeve first (like my dad used to do with my socks when I was a wee little one) which makes puts my BPI arm in easier.
As for sports:
I also do that tennis thing when I play tennis. Either that, or I hold the ball in the hand holding the racquet. Both seem to work, it just takes practice.
In swimming, I just don't use my right arm, but swim like an able-bodied person would in all other ways.
When I tried archery, I used a special mouth piece to pull back on the string since I couldn't use my arm. I didn't stick with archery, but I'm thinking of getting into it sometime in the future!
I stand on my left leg and prop my right foot on my left knee. (Basically, I look like a flamingo) Doing that causes my right leg to make a ledge which I then squeeze my shampoo onto. From there, I use my non-BPI to take small portions of shampoo to apply to different parts of my hair/head. Scrub, lather, rinse! Repeat with conditioner.
It takes balance & some practice. If I'm feeling particularly wobbly, I'll place my right foot on the edge of the bathtub or on a chair instead of my left leg. (Fortunately most kids have really good balance and childhood is all about practice and experimenting.)
Other things I do:
When I write, I have to hold down the paper with my pinky, otherwise it moves. I haven't figured out how to curl my hair one-handed yet, but I'm working on it! I can and do straighten my hair, though. I open water/soda bottles with my teeth - makes my parents cringe everytime, but it works. When shaving/putting on deodorant, I prop my RBPI arm on a wall so that that area is easier to reach.
Agreed with clothes - BPI arm goes in first. With shirts, I usually scrunch up the sleeve first (like my dad used to do with my socks when I was a wee little one) which makes puts my BPI arm in easier.
As for sports:
I also do that tennis thing when I play tennis. Either that, or I hold the ball in the hand holding the racquet. Both seem to work, it just takes practice.
In swimming, I just don't use my right arm, but swim like an able-bodied person would in all other ways.
When I tried archery, I used a special mouth piece to pull back on the string since I couldn't use my arm. I didn't stick with archery, but I'm thinking of getting into it sometime in the future!
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: What do your children do "their way"?
Isn't it amazing how our children (and adults) adapt so well? It is always motivational for me to see Cameron doing things I thought he wouldn't be able to do. The determination!!! He is not crawling, but he can roll so fast!
The whole toe/grape thing was hilarious!
Keep your answers coming! There has to be more!
Oh, here was a "lefty" camera that I saw online. http://www.wackyplanet.com/leca.html
The whole toe/grape thing was hilarious!
Keep your answers coming! There has to be more!
Oh, here was a "lefty" camera that I saw online. http://www.wackyplanet.com/leca.html
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bellasnana
- Posts: 23
- Joined: Sun Sep 16, 2007 4:23 am
Re: What do your children do "their way"?
Arabella had surgery Jan.16, and is in the "statue of liberty" brace. She learned right away and on her own that she couldn't bend over and pick up something she wanted. She figured out on her own how to get down on her knees and back up without help! I was so proud of her!
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mommieinneed
- Posts: 181
- Joined: Thu Jun 14, 2007 6:19 pm
Re: What do your children do "their way"?
Bigjavsma, Maggie does the little scoot and jump dance to get her pants up. Someone the other day was watching her and said what are you doing, she said im doing my little dance to get my jeans up.LOL. It is very cute.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: What do your children do "their way"?
Oh please I'd love a video of Javier and Maggie doing their "Dressing Dance"!!! 
oh yeah...HUGS all around!!
"Gramma" Carolyn J
LOBPI/70
ps send them to my email inbox if you want to
oh yeah...HUGS all around!!
"Gramma" Carolyn J
LOBPI/70
ps send them to my email inbox if you want to
Carolyn J
Adult LOBPI
Adult LOBPI
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Its1105
- Posts: 110
- Joined: Sat Dec 20, 2008 9:44 pm
- Injury Description, Date, extent, surgical intervention etc: RTBPI - injured during a right cervical rib resection on 12/3/2008 for thoracic outlet syndrome. The doctor completely transected the lateral cord at C5-C6 Erb's pointe and the suprascapular nerve. Had a nerve repair done on 12/12/2008 to reattach the nerves. Did two years of OT. I have some issues with overuse issues with my left shoulder and also have come to find that my joints are hypermobile so I have instability in the joints which causes a lot of problems such as pressure and pain.
- Location: Indiana
- Contact:
Re: What do your children do "their way"?
How do you straighten your hair with one hand?
I just sustained a RTBPI a little over a month ago and I really want to be able to straighten my hair, but I can't figure it out without possibly burning myself.
I just sustained a RTBPI a little over a month ago and I really want to be able to straighten my hair, but I can't figure it out without possibly burning myself.
--
Marie
RTBPI December 2008
C5-C6
Marie
RTBPI December 2008
C5-C6
Re: What do your children do "their way"?
To straighten my hair, I tilt my head to the side so that my hair falls as far away from my neck/head as possible. From there I run the straightener through my hair until it's all straight.
I've found that the longer the hair and the smaller the straightener, the easier it is to straighten. (Well, having going from shoulder length hair to pixie short to back to shoulder length, the shoulder length has been easiest. Anything longer would take a lot more time, I'd imagine.) Think 1" or smaller for straighteners.
There are definitely parts that are harder than others - the back of the head and that area right around the ear. It mostly takes a lot of maneuvering and practice.
I've found that the longer the hair and the smaller the straightener, the easier it is to straighten. (Well, having going from shoulder length hair to pixie short to back to shoulder length, the shoulder length has been easiest. Anything longer would take a lot more time, I'd imagine.) Think 1" or smaller for straighteners.
There are definitely parts that are harder than others - the back of the head and that area right around the ear. It mostly takes a lot of maneuvering and practice.