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I found this website for pain therapies
Posted: Sun Oct 26, 2003 12:08 am
by admin
Re: I found this website for pain therapies
Posted: Mon Oct 27, 2003 7:08 pm
by jennyb
Don't know about you, I found that website very annoying to navigate, and I knew what I was looking for, must be very confusing to those who don't.
I have seen these things offered to tbpi before, usually not by tbpi specialists though. Note that the neurostimulator won't work on avulsed nerves (which cause the worst pain) and that even in cases where it has worked, it tends to stop working after a few weeks or months. The spinally implanted drug pump has significant risks attached (as does anything implanted, especially in the spinal area) which I'm interested to see the makers don't mention-or maybe they do and its buried somewhere in this site. Here is a site that explains the risks and uses well
http://www.arachnoiditis.org.nz/content ... ments.html
I feel bad sounding so negative, if anyone has gained significant easing of avulsion pain over a long term with one of these things please post here, I'd love to be wrong!
Re: I found this website for pain therapies
Posted: Tue Oct 28, 2003 11:15 am
by lizzyb
Yeah I agree with Jen although I appreciate the original posters' intention was to try and help others...I too would love to hear from ANYONE with a BPI who has had real long lasting relief from these pumps. I have had several people email me telling me they were absolutely useless in curing the pain caused by a TBPI regardless of whether they had avulsions or not. I am wondering if this procedure is similar to epidural anaesthesia used for ceasarian sections?
Liz B