I found this website for pain therapies

Treatments, Rehabilitation, and Recovery
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I found this website for pain therapies

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jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: I found this website for pain therapies

Post by jennyb »

Don't know about you, I found that website very annoying to navigate, and I knew what I was looking for, must be very confusing to those who don't.

I have seen these things offered to tbpi before, usually not by tbpi specialists though. Note that the neurostimulator won't work on avulsed nerves (which cause the worst pain) and that even in cases where it has worked, it tends to stop working after a few weeks or months. The spinally implanted drug pump has significant risks attached (as does anything implanted, especially in the spinal area) which I'm interested to see the makers don't mention-or maybe they do and its buried somewhere in this site. Here is a site that explains the risks and uses well http://www.arachnoiditis.org.nz/content ... ments.html
I feel bad sounding so negative, if anyone has gained significant easing of avulsion pain over a long term with one of these things please post here, I'd love to be wrong!
lizzyb
Posts: 809
Joined: Sun Nov 04, 2001 6:36 am

Re: I found this website for pain therapies

Post by lizzyb »

Yeah I agree with Jen although I appreciate the original posters' intention was to try and help others...I too would love to hear from ANYONE with a BPI who has had real long lasting relief from these pumps. I have had several people email me telling me they were absolutely useless in curing the pain caused by a TBPI regardless of whether they had avulsions or not. I am wondering if this procedure is similar to epidural anaesthesia used for ceasarian sections?

Liz B
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