United Brachial Plexus Network, Inc.

Is on the children's blog website!

http://childrenshospitalblog.org/

Way to go Kailynn! BPI awareness is so crucial to educating people about OBPI, TBPI, and other types of paralysis.

Age is not a factor with BPI. However, giving and getting support to one another is key! Never give up, find ways to adapt, invent items, live a life of positive emotions, and accept people as people!

Hey, Rich! She looks a lot like you.

Keep Smiling!

Tony/ASC
ROBPI/Adult
"Just One More Step"

Hi Rich!!

I read your daughter's blog. Awesome job! It seems like she doesn't let the OBPI stop her one bit. I could take a lesson or two from her. It's been harder on my husband and I than it has been for our 5.5 month old daughter who just takes a licking and keeps on ticking. Anyway, we are headed up to Boston to see Dr. Peter Waters on Jun 10th. He will be our second opinion. I am almost certain that surgery will be the plan since she still has major deficits. I saw that your daughter had surgery with him in infancy. If possible, I'd like to ask you a few questions regarding the postop recovery, secondary surgeries, and etc.

Anytime. richard@ubpn.org is my email. or rlooby@gmail.com

she had surgery at 2 and another at 15


rich

Rich,
Kailyn will do marvelous things. She's got the gifts for passing it on. My best HAZAAS to her.
Carolyn J
LOBPI

Thanks so much Rich! I just emailed you.