Is on the children's blog website!
http://childrenshospitalblog.org/
Proud of my daughter-her talk at New England BPI
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
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ASC
- Posts: 113
- Joined: Mon Oct 08, 2012 10:41 am
- Injury Description, Date, extent, surgical intervention etc: OBPI
Re: Proud of my daughter-her talk at New England BPI
Way to go Kailynn! BPI awareness is so crucial to educating people about OBPI, TBPI, and other types of paralysis.
Age is not a factor with BPI. However, giving and getting support to one another is key! Never give up, find ways to adapt, invent items, live a life of positive emotions, and accept people as people!
Hey, Rich! She looks a lot like you.
Keep Smiling!
Tony/ASC
ROBPI/Adult
"Just One More Step"
Age is not a factor with BPI. However, giving and getting support to one another is key! Never give up, find ways to adapt, invent items, live a life of positive emotions, and accept people as people!
Hey, Rich! She looks a lot like you.
Keep Smiling!
Tony/ASC
ROBPI/Adult
"Just One More Step"
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JaelsMom
- Posts: 3
- Joined: Thu May 29, 2014 4:46 pm
- Injury Description, Date, extent, surgical intervention etc: My daughter Jael Cristina- born 12/15/13 LOBPI. Til now just physical and occupational therapy. Have sought an opinion from the BPI clinic at Johns Hopkins and have an appointment to see Dr. Waters at Boston Children's Hospital.
Re: Proud of my daughter-her talk at New England BPI
Hi Rich!!
I read your daughter's blog. Awesome job! It seems like she doesn't let the OBPI stop her one bit. I could take a lesson or two from her. It's been harder on my husband and I than it has been for our 5.5 month old daughter who just takes a licking and keeps on ticking. Anyway, we are headed up to Boston to see Dr. Peter Waters on Jun 10th. He will be our second opinion. I am almost certain that surgery will be the plan since she still has major deficits. I saw that your daughter had surgery with him in infancy. If possible, I'd like to ask you a few questions regarding the postop recovery, secondary surgeries, and etc.
I read your daughter's blog. Awesome job! It seems like she doesn't let the OBPI stop her one bit. I could take a lesson or two from her. It's been harder on my husband and I than it has been for our 5.5 month old daughter who just takes a licking and keeps on ticking. Anyway, we are headed up to Boston to see Dr. Peter Waters on Jun 10th. He will be our second opinion. I am almost certain that surgery will be the plan since she still has major deficits. I saw that your daughter had surgery with him in infancy. If possible, I'd like to ask you a few questions regarding the postop recovery, secondary surgeries, and etc.
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Proud of my daughter-her talk at New England BPI
Anytime. richard@ubpn.org is my email. or rlooby@gmail.com
she had surgery at 2 and another at 15
rich
she had surgery at 2 and another at 15
rich
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Proud of my daughter-her talk at New England BPI
Rich,
Kailyn will do marvelous things. She's got the gifts for passing it on. My best HAZAAS to her.
Carolyn J
LOBPI
Kailyn will do marvelous things. She's got the gifts for passing it on. My best HAZAAS to her.
Carolyn J
LOBPI
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JaelsMom
- Posts: 3
- Joined: Thu May 29, 2014 4:46 pm
- Injury Description, Date, extent, surgical intervention etc: My daughter Jael Cristina- born 12/15/13 LOBPI. Til now just physical and occupational therapy. Have sought an opinion from the BPI clinic at Johns Hopkins and have an appointment to see Dr. Waters at Boston Children's Hospital.
Re: Proud of my daughter-her talk at New England BPI
Thanks so much Rich! I just emailed you.