United Brachial Plexus Network, Inc.

Our attorney is coming tonight to film jojo doing normal activities. What should I have handy? Wii, toys, shirts and pants with and without buttons, snaps and zippers, socks.....WHAT ELSE

FREAKING OUT A LITTLE...GETTING WAY CLOSE TO THE END


email please marlyncma@hotmail.com

Think about what he normally does during the day? What are the daily things he uses or can use? I would think your attorney would want to film him in the daily activities he does because that is going to show more proof than trying to have things surrounding him that may pose as if you are stageing something. I hope this has helped you. I work in the legal field and we look for natural surroundings when working on a case. Good luck and I will say a prayer for you!

I would focus on Activities of Daily Living....zipping /putting on clothes, personal hygiene tasks,difficult tasks that are directly related to independence.......[ Going through the lunch line at school and/or buffet line in restaurants was and is still impossible without assistance for me] . carrying books; fixing his own lunch(buttering/slicing bread), cutting his own meat at a meal....etc.

You all are in my prayers today Marlyn, please update us how the filming went.
HUGS,
Gramma Carolyn J

Filming went great. Jojo was very natural - when he got frustrated it showed as normal and when he was proud it showed. The tasks he completed were:
dressing w/ tshirt, jeans, socks and button up shirt
spreading peanut butter
opening baggie and tupperware
reading a paperback book
a series of stretches and exercises
toothpaste on toothbrush

He was very nervous at first, but warmed right up to our lawyer. I am proud of him. Thanks everyone!

Marlyn

WAAAAHOO JOJO!!!! I am so proud of you.

HUGS to you both,
"Gramma" Carolyn J