hello to all
my name is Eran im 30 years old, i from israel i have BP injury last 6 years.
I had an motor cycle accident in 2003 after 3 nonth i do operation in israel thet now i know not help me my right arm stil paralyzed. only now i start to understand thet it will be permanent and i want to be sure thet bifor i give up i do all what i can do to try fix my arm.
i hope you can help me in israel thet is no awareness to this injury,i never go ather DR.betside the DR. thet do my operation. i have a few question and will be happy if u can anser them
1. what is the difference between BPI to UBPN?
2. i can join to the camp events or another events if im from israel? i never meet samone like me (the same injury)
3. who is the most expert DR. in the world today in BPI?
only now i hear about DR.NATH , when i do physiotherapy they tell me thet ther is one good DR. in France samone know samthing about it?
thank you
eran
my injurie
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: my injurie
Hi,
I can answer a few of your questions:
1) BPI stands for Brachial Plexus Injury, UBPN is the name of this organization United Brachial Plexus Network
2) Yes of course you are welcome to participate in the Camp UBPN when it is held (next one is in 2010, always in the USA)
Don't know who can help you for your TBPI, but I am sure others here will know more about your 3rd question.
Marieke 33, LOBPI
I can answer a few of your questions:
1) BPI stands for Brachial Plexus Injury, UBPN is the name of this organization United Brachial Plexus Network
2) Yes of course you are welcome to participate in the Camp UBPN when it is held (next one is in 2010, always in the USA)
Don't know who can help you for your TBPI, but I am sure others here will know more about your 3rd question.
Marieke 33, LOBPI
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krembomoca
Re: my injurie
thank for your answer
and now i more understand so i think i belong here
so why have tow camp?
one of the UBPN and one of BPI?
and now i more understand so i think i belong here
so why have tow camp?
one of the UBPN and one of BPI?
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: my injurie
No, there is one camp. It is run by UBPN for people with a BPI, either birth injured like me or traumatic injury like yours.
Re: my injurie
Hello Eran.
What part of Israel do you live in? My son has friends and parents of friends in various parts of Israel.
I am so sorry about your injury. I find Traumatic (means we have had BPI from an accident, not childbirth)Brachial Plexus Injury so hard as there are so many that do not know about or understand this injury.
As for specialists around the world I do not know. I do know Mayo Clinic in Rochester,Minnesota USA is a well known clinic and hospital through out the world. It has Brachial Plexus specialists. I think it is wise to have an opinion from someone who specializes in our type of injury. If you have the resources to come to the USA, come and get examined after researching all options. I have not heard of anyone in France-not sure if there are specialists there but I think there may be. Best wishes in your search.
Jannie
What part of Israel do you live in? My son has friends and parents of friends in various parts of Israel.
I am so sorry about your injury. I find Traumatic (means we have had BPI from an accident, not childbirth)Brachial Plexus Injury so hard as there are so many that do not know about or understand this injury.
As for specialists around the world I do not know. I do know Mayo Clinic in Rochester,Minnesota USA is a well known clinic and hospital through out the world. It has Brachial Plexus specialists. I think it is wise to have an opinion from someone who specializes in our type of injury. If you have the resources to come to the USA, come and get examined after researching all options. I have not heard of anyone in France-not sure if there are specialists there but I think there may be. Best wishes in your search.
Jannie
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Judy-T
- Posts: 557
- Joined: Fri Nov 02, 2001 11:59 am
- Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
- Location: Florida
Re: my injurie
Here is the medical resource directory link.
http://ubpn.org/medicalresources/
The is a Dr. Gilbert in France. He maybe the one that you have heard of. Hope this info helps you.
Judy 48(ROBPI)
http://ubpn.org/medicalresources/
The is a Dr. Gilbert in France. He maybe the one that you have heard of. Hope this info helps you.
Judy 48(ROBPI)
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krembomoca
Re: my injurie
thank you jannie G
im from center of israel(petah tiqwa)if you hear .
thank you for your help i will contact that Clinic ,i alrdy that with the Clinic of DR.nath's if you know him and now i will get another opinion .
ERAN
im from center of israel(petah tiqwa)if you hear .
thank you for your help i will contact that Clinic ,i alrdy that with the Clinic of DR.nath's if you know him and now i will get another opinion .
ERAN
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krembomoca
Re: my injurie
Thank you also JUDY-T
and thanks for all the nice persons that want to help me
and ather persons in here
and thanks for all the nice persons that want to help me
and ather persons in here
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ahjanrbyn
Re: my injurie
also dr edward berzin and dr arturo armenta are also listed in this web site they are reconstructive plastic surgery, fixing your type of injury is what they specialize in check them out im sure they would be willing to help you