United Brachial Plexus Network, Inc.

Hey all, So great to hear all these wonderful success stories. I hope I get to post one of those soon. My son Malik is 1yr and 2 months old. Next week we are going to meet our secondary surgeon. Malik had a very successful Nerve transfer in November when he was 5 Months old. Now we are looking at a Tendon transfer from the front of his shoulder to the back, for external rotation. Has anyone had experience with this surgery? Pro's Con's of having it done?
We are going to Mayo in Rochester on the 10th so WISH US LUCK!

Denae
Mom to Malik 1yr old LOBPI

Keep us posted, Danae. I'm sure you will have another Success Story for us!

I'll be thinking of you and Malik on the 10th.
Hugs,
"Gramma"Carolyn J
LOBPI

My daughter had a tendon transfer done when she was 25 months old. I am not sure if it is exactly the same as what Malik will have, but they did work with the latisimus doris (sorry if I didn't spell it correctly). She has had an unbelievable recovery. Even Dr. Kozin said she had much better results that he expected.
After surgery, she went from 90 degrees flexion to 170. She gained external rotation, and did not lose internal. Only problems now are a winging scap, some fine motor issues (she has trouble isolating her index finger) and her arm is in that "fixed" position whenever she runs. We still do OT, and I am afraid to give it up because I don't want her regress. Every child is different, but I am so glad we decided to do it. Good luck