United Brachial Plexus Network, Inc.

I had my neurologist follow up from my EMG last week. It showed botht he carpel tunnel and the ulnar nerve problems increasing in the right side and the presance of carpel tunnel and ulnar nerve damage in the left though the cts isn't as progressed as the right side. I forgot to ask him if the ulnar on the left side was new and probably a result of my car accident.

He told me we have to do something about the right since it's all I have pretty much so he gave me two options. Steroid shots which would only be a temporary fix or surgery to release the carpel tunnel and move the ulnar nerve. This makes me very nervious. what if the screw up the surgery and I'm stuck with two bad arms (bed they'd give me my ssd then huh. *smirk*) So I see a neuro surgeon next week for a consult.

I asked him about the left side and he said he wont' touch it and wont' let anyone around here touch it either because he knows noone who has the knowledge to do anything and is afraid even a routine surgery like the ct release could get screwed up and cause more damage.

I told him about my trying to get dr. nath to look at my reports and send me a treatment plan and asked him if Dr. Nath confered with him about surgeries would he do them. he said the CT release and Ulnar...probably but nothing more.

I also called my insurance and they said if I can get my pcp or my neuro to write some kind of letter saying that there are no specialists in the plan that they would probably cover me to see Dr. Nath. Here's hoping.

So I keep pushing on. I'm surprised I got this far.

Kissy
You keep pushing...
I am glad that you are FINALLY making some progress with the doctors and they recognize they cannot help you.

Let's hope the doctor can write a letter and you can finally get some real bpi help.

Kath robpi/adult

Christina,
Thats great that you are finally making some progress with your neuro! I hope they give you your letter and you can be seen by some one with bpi experience.

Many good luck wishes being sent your way!
Hugs,
Amy 20 years old ROBPI from MN

I'm wondering if there are any BPI specialists who do carpal tunnel releases. So maybe if a BPi doc says its ok you could still do your affected side as well(if you want)
Becky

Christina,
I am happy for you that you're getting direct answers and that you uwill be seeing a BPI SPecialist after all this time. It really helped me.

Best Wishes and a <<<<HUG)))),
Carolyn j


Message was edited by: Carolyn J

Becky...the only specialist near us is Dr. Addelson in Pittsburg. I don't know if he does carpel releases or not.

Now and dont' get your hopes up. I'm not actually "seeing" any specialists. Dr. Nath has just agreed that since there haven't been and won't be any clinics near me in the near future, that he would look over my medical records and veiw a video I send with my rom and email me a treatment plan. Granted if surgery is suggested then I'd have to go to houston for that. As much as Analisa, from his office, assured me he'd be able to help I'm rather hesitant that anyting will be able to be done.

But small steps forward are better than any backward.

I am glad that you are finally getting somewhere. When I had my surgery on my non-bpi arm they had to do the IVs in the foot.This is something to let the anesthesialogist know.

Oh my Judy...I hadn't even thought of that. Geez. Now I'm really going to be nervous.