United Brachial Plexus Network, Inc.

Hello! I am so excited to have found this board. My name is Katy. I'm 23. I have a brachial plexus injury which was a result of a traumatic birth. I have never had any surgeries or procedures done. I have very limited range of motion in my arm, shoulder, wrist, and hand. I have very little, if any feeling on the top of my hand and arm.
I have recently had a "straining" or "pinching" sensation that has been bothering me for the last couple months. I'd really like to get that fixed.

Anyway- if there is anybody in the same boat as me and would like to share their experiences I'd appreciate it!!

Welcome Katy
I am glad you found us.
You really need to see a bpi specialist.
Not all doctors have information about bpi injury nor are they able to treat us.
Kath (robpi/adult)

Glad to have you here. It is so wonderful that first time you find out you are not alone out there!

Welcome Katy,
Just keep reading the Message Topics on all 3 Boards and you'll hear about most everything; I learn alot from parents too..even at my age II learn something new every time I come to the Boards. Just be sure to set a timer or you'll loose 3-3 hours fast!!
Hugs,
Carolyn J
Adult LOBPI
Age 67 & pru\oud of it!

Thank you all for your responses!
I have seen our regular doc and she referred me to a neurologist. We are a military family so I am not exactly sure where to find a bpi specialist. We are also in the middle of rural Missouri and I have checked around and called other hospitals in St Louis and such, but haven't found anyone yet. I'll keep looking! I have also called Dr. Nath's office but they said that Tricare(military insurance) does not cover any of the procedures.
My appt with the Neurologist is not until Apr.17. I will have to see what they say!
Thanks again everyone!! I am so happy I have found this board!!!!

This is still me! I finally joined rather than being a "guest" Katy82

Welcome "KATY82"
Many Hugs and keep coming back here.
Hugs,
Carolyn J
Adult LOBPI,age 67 & proud of it!

Katy, have you tried the Mayo clinic, I know they see adults. I hope you get some information from seeing the neurologist on the 17th of April. Good Luck!

Where are you feeling the "straining/pintching" sensation? I feel a sort of straining sensation that turns to pain and often makes my back go numb(like your foot fell asleep) This is in my upper back/shoulder. I might be having tendon transfers done to stabalize my scapula, my doctor think that an unstable scapula could be the cause of all this. I will find out April 19th.

i hope that this straining sensation resolves and you dont have to face surgery. Good luck!
Amy 19 ROBPI from MN

I'll have to look into the Mayo clinic!

I have that weird feeling in my right hand quite frequently. Like my hand feel asleep, but it lasts for an hour or 2 at a time. It's totally annoying!

The pinching feeling I get is in my right shoulder and kind of radiates down my shoulder blade and arm. This just started recently so it in kind of troubling. I just hope it's nothing too serious!

Hi Katy

I hate to be a nag on this subject but do you stretch your arm at all?
It is important to keep it from getting tight.

I tried weight training in my 50's but I think I damaged my arm... I don't have that kind of strength.

You should try to stretch it out at one point everyday.
Now that I preached to you I will go stretch myself.

I get lazy about it and my arms and hands pinch... my hand goes to sleep but I can't feel all the pins and needles...

Kath (robpi/adult)