Hello! I am so excited to have found this board. My name is Katy. I'm 23. I have a brachial plexus injury which was a result of a traumatic birth. I have never had any surgeries or procedures done. I have very limited range of motion in my arm, shoulder, wrist, and hand. I have very little, if any feeling on the top of my hand and arm.
I have recently had a "straining" or "pinching" sensation that has been bothering me for the last couple months. I'd really like to get that fixed.
Anyway- if there is anybody in the same boat as me and would like to share their experiences I'd appreciate it!!
New, with question...
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: New, with question...
Welcome Katy
I am glad you found us.
You really need to see a bpi specialist.
Not all doctors have information about bpi injury nor are they able to treat us.
Kath (robpi/adult)
I am glad you found us.
You really need to see a bpi specialist.
Not all doctors have information about bpi injury nor are they able to treat us.
Kath (robpi/adult)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: New, with question...
Glad to have you here. It is so wonderful that first time you find out you are not alone out there!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: New, with question...
Welcome Katy,
Just keep reading the Message Topics on all 3 Boards and you'll hear about most everything; I learn alot from parents too..even at my age II learn something new every time I come to the Boards. Just be sure to set a timer or you'll loose 3-3 hours fast!!
Hugs,
Carolyn J
Adult LOBPI
Age 67 & pru\oud of it!
Just keep reading the Message Topics on all 3 Boards and you'll hear about most everything; I learn alot from parents too..even at my age II learn something new every time I come to the Boards. Just be sure to set a timer or you'll loose 3-3 hours fast!!
Hugs,
Carolyn J
Adult LOBPI
Age 67 & pru\oud of it!
Carolyn J
Adult LOBPI
Adult LOBPI
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: New, with question...
Thank you all for your responses!
I have seen our regular doc and she referred me to a neurologist. We are a military family so I am not exactly sure where to find a bpi specialist. We are also in the middle of rural Missouri and I have checked around and called other hospitals in St Louis and such, but haven't found anyone yet. I'll keep looking! I have also called Dr. Nath's office but they said that Tricare(military insurance) does not cover any of the procedures.
My appt with the Neurologist is not until Apr.17. I will have to see what they say!
Thanks again everyone!! I am so happy I have found this board!!!!
I have seen our regular doc and she referred me to a neurologist. We are a military family so I am not exactly sure where to find a bpi specialist. We are also in the middle of rural Missouri and I have checked around and called other hospitals in St Louis and such, but haven't found anyone yet. I'll keep looking! I have also called Dr. Nath's office but they said that Tricare(military insurance) does not cover any of the procedures.
My appt with the Neurologist is not until Apr.17. I will have to see what they say!
Thanks again everyone!! I am so happy I have found this board!!!!
Re: New, with question...
This is still me! I finally joined rather than being a "guest" 
Katy82
Katy82-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: New, with question...
Welcome "KATY82"
Many Hugs and keep coming back here.
Hugs,
Carolyn J
Adult LOBPI,age 67 & proud of it!
Many Hugs and keep coming back here.
Hugs,
Carolyn J
Adult LOBPI,age 67 & proud of it!
Carolyn J
Adult LOBPI
Adult LOBPI
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: New, with question...
Katy, have you tried the Mayo clinic, I know they see adults. I hope you get some information from seeing the neurologist on the 17th of April. Good Luck!
Where are you feeling the "straining/pintching" sensation? I feel a sort of straining sensation that turns to pain and often makes my back go numb(like your foot fell asleep) This is in my upper back/shoulder. I might be having tendon transfers done to stabalize my scapula, my doctor think that an unstable scapula could be the cause of all this. I will find out April 19th.
i hope that this straining sensation resolves and you dont have to face surgery. Good luck!
Amy 19 ROBPI from MN
Where are you feeling the "straining/pintching" sensation? I feel a sort of straining sensation that turns to pain and often makes my back go numb(like your foot fell asleep) This is in my upper back/shoulder. I might be having tendon transfers done to stabalize my scapula, my doctor think that an unstable scapula could be the cause of all this. I will find out April 19th.
i hope that this straining sensation resolves and you dont have to face surgery. Good luck!
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
-
admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: New, with question...
I'll have to look into the Mayo clinic!
I have that weird feeling in my right hand quite frequently. Like my hand feel asleep, but it lasts for an hour or 2 at a time. It's totally annoying!
The pinching feeling I get is in my right shoulder and kind of radiates down my shoulder blade and arm. This just started recently so it in kind of troubling. I just hope it's nothing too serious!
I have that weird feeling in my right hand quite frequently. Like my hand feel asleep, but it lasts for an hour or 2 at a time. It's totally annoying!
The pinching feeling I get is in my right shoulder and kind of radiates down my shoulder blade and arm. This just started recently so it in kind of troubling. I just hope it's nothing too serious!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: New, with question...
Hi Katy
I hate to be a nag on this subject but do you stretch your arm at all?
It is important to keep it from getting tight.
I tried weight training in my 50's but I think I damaged my arm... I don't have that kind of strength.
You should try to stretch it out at one point everyday.
Now that I preached to you I will go stretch myself.
I get lazy about it and my arms and hands pinch... my hand goes to sleep but I can't feel all the pins and needles...
Kath (robpi/adult)
I hate to be a nag on this subject but do you stretch your arm at all?
It is important to keep it from getting tight.
I tried weight training in my 50's but I think I damaged my arm... I don't have that kind of strength.
You should try to stretch it out at one point everyday.
Now that I preached to you I will go stretch myself.
I get lazy about it and my arms and hands pinch... my hand goes to sleep but I can't feel all the pins and needles...
Kath (robpi/adult)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi