United Brachial Plexus Network, Inc.

Amy:
I love that you learned to control it! What a great parlor game...

I guess it is annoying her, as she went to the nurse today because of it. She can't feel it happening, it is just if she sees it.

As for the temp...oy vey. A glove makes such a big difference, eh? I know her arm is usually cold, but this temperature swinging must be really bothersome to her.

Thanks for all the info,
and Kath...just the upper arm? hmmm and what controls the lower arm and hand? the handiplexus?????

claudia

Yup Claudia .... it's the handplexus...
I bet if I wrote that down on a form, no one would notice...LOL..
Your too funny!
Kath adult/robpi

I frequently have twitches in my BPI arm. I didn't really start noticing it until a year or so ago. Maybe it was happening and I just couldn't feel it. Temperature doesn't usually bother me too much, but my circulation in my BPI arm is pretty bad. It's really obvious after I have been running or doing something active. The area around my bicep turns red and splotchy. The skin there is also a little rough.
Anyway... it's definitely all BPI stuff.
I'm also extremely double jointed in the fingers in my BPI arm. Anyone else?

My bpi arm twitches all the time... i think its kind of funny... people look at me funny but i really dont care... it doesnt get really colder than the other one, but it gets cold first now that i think about it.. and yes i am def double jointed in the fingers in my bpi arm!! i can bend the thumb back to my wrist and not even feel it...
~Mel, 20 LOBPI

Katie too can hyperextend her fingers. Not sure I would dub it double jointed but definitely off!

Her arm stays cold and swollen as well as the twitchy. Stink stuff all around but learned from Kath years ago to keep something soft and warm close by. She gets really stiff when she first wakes up too, has to work it out.

I too am hyperflexible, all my joints are actually, but my OBPI hand/fingers are more so.

Marieke (32,LOBPI)