Philadelphia Area Docs for Adults?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Jaboo
Posts: 10
Joined: Tue Sep 20, 2011 9:45 pm
Injury Description, Date, extent, surgical intervention etc: Adult onset right arm/shoulder/parthand bp Traction, complications include carpal, muscle strain,
Inflmtn, limit range of motion. stemming from c4,5 T1. Diag took 10yrs so i have seen it all and just now realize the puzzle.

Philadelphia Area Docs for Adults?

Post by Jaboo »

Hello all. After about 12-15 years of uncertainty, needles, scans, putpatient procedures, you all have been there..
I can finally put a name to my conditions. It all now makes so much sense to the exact detail! However, I am mainly working with my primary- who doesn't humiliate me with monthly urine or blood tests for substances I simply do not care for (lots of doubt when you are young yet suffering!! Its ashame and criminal to humiliate people, I am strongly PRO freedom if one chooses that road) My Specialist, Dr. Bryan DeSouza, Neurology, lankenau hospital, has been helpful with the diagnosis. Does anyone know of a good group that will be aware of this misunderstood and complicated condition in Philly)

I hear Jefferson has a unit but I have read that they are a special athletic oriented crew.

Thank You, J
"The greatest temptation in life is to confuse your dreams with reality. The permanant defeat of life comes when you surrender your dreams to reality" - james michener, The Drifters.
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Philadelphia Area Docs for Adults?

Post by hope16_05 »

At the top of the page, there is a resources tab with a list of many doctors and their completed surveys regarding the population that they best serve.
Hope that helps,
Amy 24 years old ROBPI from MN
Amy 28 years old ROBPI from MN
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