I may have posted this before, but I read through it again and they mention a rate or .38/1000. I always wondered where that number came from because it seems so out of whack with every other statistic I have ever read. It's amazing that treatments have rarely strayed from what they were doing 40-70 years ago.
I also found this paragraph interesting, considering that many many articles say a majority of injuries spontaneously recover, and is frequently reported as 90-95%:
Complete spontaneous recovery of function is hoped for in all patients, but it is impossible to predict which patient will recover fully and which will not. A wide difference in the incidence of complete recovery has been reported. Wickstrom found the incidence to be 13.4 per cent, whereas in our institution only 7 per cent recovered fully.
1967 article about long term follow up Erb's Palsy
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
1967 article about long term follow up Erb's Palsy
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- Long Term follow up study 1967.pdf
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: 1967 article about long term follow up Erb's Palsy
Rich
I found this very interesting. I was born Nov of 1939 and my treatment started 2 weeks later at this hospital. They made a special brace for me that when around my midriff and up my arm (traffic cop position) my hand was strapped to the brace so that the palm of my hand faced my ear... It looked like a torture contraption all velvet, leather and had to be laced up the front. It had eye holes that grew as I did because I wore it for 11 months. My arm was bent at the elbow. My parents had to remove the brace and they had to do ROM several times a day. I had all home therapy and they were very faithful to it along with all the stretching and massaging. It seemed to me that they way they described it... It was a family job to get me moving. Since I have Horner's ... my prognosis was not good...but I've done well with what I have.
Sorry I threw out the brace about 12 years ago right before I found UBPN. I wish I could find my records. I contacted them and gave them a case number but they could not find the old records.
Thanks for posting this article, it was especially interesting to me because that it the hospital my parents took me to for treatment.
I found this very interesting. I was born Nov of 1939 and my treatment started 2 weeks later at this hospital. They made a special brace for me that when around my midriff and up my arm (traffic cop position) my hand was strapped to the brace so that the palm of my hand faced my ear... It looked like a torture contraption all velvet, leather and had to be laced up the front. It had eye holes that grew as I did because I wore it for 11 months. My arm was bent at the elbow. My parents had to remove the brace and they had to do ROM several times a day. I had all home therapy and they were very faithful to it along with all the stretching and massaging. It seemed to me that they way they described it... It was a family job to get me moving. Since I have Horner's ... my prognosis was not good...but I've done well with what I have.
Sorry I threw out the brace about 12 years ago right before I found UBPN. I wish I could find my records. I contacted them and gave them a case number but they could not find the old records.
Thanks for posting this article, it was especially interesting to me because that it the hospital my parents took me to for treatment.
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: 1967 article about long term follow up Erb's Palsy
AMAZING,Kath!!
Thanks Rich for posting this...it's very interesting to me who has not recieved any interventions as a child.
Hugs,
Carolyn J
LOBPI/72
Thanks Rich for posting this...it's very interesting to me who has not recieved any interventions as a child.
Hugs,
Carolyn J
LOBPI/72
Carolyn J
Adult LOBPI
Adult LOBPI