WELL, FOR A 2 HOUR DRIVE AND A 3 HOUR DOCTOR APPTMENT FOR THOMAS.... EVERYONE WAS VERY NICE. GAVE US MORE THINGS FOR THOMAS TO DO AS FAR AS THERAPY.....
DOCTOR DOES NOT RECOMEND ANY MORE SURGERYS FOR THOMAS HE SAID HE COULD LOSS WHAT USE OF HIS SHOULDER THAT HE DOES HAVE. HIS SHOULDER IS THE WEAKEST THEN HIS WRIST. HE WAS AMAZED AT THE USE OF HIS FINGERS ALL DOCTORS ARE HE SHOULD NOT BE ABLE TO WITH IS INJURY BUT SOME HOW THAT NERVE GRAFT WORKED WERE OTHERS DID NOT GROW BACK HE HAS ONLY A LITTLE DELTOID, BICEP, AND FINGER FLEXERS THAT WORK WOW.......... BUT HE CAN DO SO MUCH WITH SO LITTLE ... I AM THANKFUL FOR WHAT HE HAS AND THE WORK THAT WAS DONE BY DR.LAURENT "MISS YOU'" AT TEXAS.
SCOTTISH RITE ATLANTA UPDATE ON VISIT
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: SCOTTISH RITE ATLANTA UPDATE ON VISIT
Carron,
Thank you for the update on Thomas. This is good news I love to hear about my OBPI "Grands"!
HUGS for both of you,
"Gramma" Carolyn J
Thank you for the update on Thomas. This is good news I love to hear about my OBPI "Grands"!
HUGS for both of you,
"Gramma" Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: SCOTTISH RITE ATLANTA UPDATE ON VISIT
I'm glad to hear that Thomas is doing so well. I'm sure it's hard to watch him struggle sometimes but he will be able to face and overcome most of the challenges he faces.
I did not have any surgery, even with the extent of my injuries because of my age.I guess they did not think there was anything they could do for me. I have gained, over the years, more movement then ever expected and had some set backs during growth spurts. My arm and hand functioned so much better as a young adult, then it did when I was a child... There is a lot to be said and learned about some of the natural healing that occurs as we mature.
I hope Thomas has a great deal of healing as he grows and matures.
Kath
I did not have any surgery, even with the extent of my injuries because of my age.I guess they did not think there was anything they could do for me. I have gained, over the years, more movement then ever expected and had some set backs during growth spurts. My arm and hand functioned so much better as a young adult, then it did when I was a child... There is a lot to be said and learned about some of the natural healing that occurs as we mature.
I hope Thomas has a great deal of healing as he grows and matures.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi