This past week I successfully finished drinking out of a can using only my affected arm and didnt even pour it on myself! Doesnt sound like much but I felt so proud. So heres to another first!
Thank you all for always being here,
Evan/18/LOBPI
another first!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: another first!
That is Amazing!
I was just in the hospital and the iv in my left elbow left me thirsty. No one got it that I could not get the glass to my face without it tipping.
Three Cheers for you!
Kath robpi/adult
I was just in the hospital and the iv in my left elbow left me thirsty. No one got it that I could not get the glass to my face without it tipping.
Three Cheers for you!
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: another first!
Way to go Evan! It's cool when we fiind new things we can do.
Kath, I'm with you! I can't eat or drink if they put the IV in my right elbow crook. I have a few favorite sites for IVs, thank God I am now used to getting them (at least 2 a year now when a migraine that won't die comes along). The nurses listen to me now too (not just because I am one too), b/c they see that I have been in and out of the hospital for the last 5 years and know my body!
Marieke 33, LOBPI
Kath, I'm with you! I can't eat or drink if they put the IV in my right elbow crook. I have a few favorite sites for IVs, thank God I am now used to getting them (at least 2 a year now when a migraine that won't die comes along). The nurses listen to me now too (not just because I am one too), b/c they see that I have been in and out of the hospital for the last 5 years and know my body!
Marieke 33, LOBPI
Re: another first!
That is freaking sweet! Congrats!
Re: another first!
I dribbled a basketball with my affected arm for the first time two days ago!
Chris 24/LOBPI
Chris 24/LOBPI
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: another first!
WOW, Congratulations, Chris!
Keep up these "Firsts".
Hugs all around,
Carolyn J
LOBPI/70
Keep up these "Firsts".
Hugs all around,
Carolyn J
LOBPI/70
Carolyn J
Adult LOBPI
Adult LOBPI
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: another first!
Way to go go Chris! I'm glad to hear you can dribble the ball and enjoy yourself.
Marieke I have the world's worst veins. Even the IV teams go crazy. They found one in the crook of my arm and one near my wrist. The one near the wrist blew after they put in the stent. I hate having my blood drawn or IV's because they can't find a vein. I have so much scar tissue in my arm from years of tests and tiny veins... ugh. Getting a blood test is one of my biggest nightmares!
Kath robpi
Marieke I have the world's worst veins. Even the IV teams go crazy. They found one in the crook of my arm and one near my wrist. The one near the wrist blew after they put in the stent. I hate having my blood drawn or IV's because they can't find a vein. I have so much scar tissue in my arm from years of tests and tiny veins... ugh. Getting a blood test is one of my biggest nightmares!
Kath robpi
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: another first!
So, today I was working with weights at home, and was able to do 3 sets of 10 reps of one arm bicep curls with a 10+ lb weight, with control, with my BPI arm. I have never been able to do that in my life with my left arm! In the past, it's always been more of an uncontrolled dropping of the weight followed by the inability to lift the weight. That's an accomplishment anyone else I know might not understand.
-Chris, 24/LOBPI
-Chris, 24/LOBPI
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: another first!
Congrats, Chris..anytime you incease function of your Left arm is great! I say you have no limits! 
Carolyn J
LOBPI sometimes an adult
Carolyn J
LOBPI sometimes an adult
Carolyn J
Adult LOBPI
Adult LOBPI
Re: another first!
Chris,
Thats awesome about dribbling the basketball and about lifting the weights! Sorry I havent gotten here sooner to tell you that. I have sort of given up on lifting weights with my left because after I do any reps at all, I dont sleep for like three days. Definate difference between productive and unproductive pain and the pain I get after lifting with my left is definately unproductive. Which is a drag because I really want to work it out more.
These affected arm firsts are cool, keep postin as they happen man, and ill do the same! When they happen not if!
Evan/18/LOBPI
Thats awesome about dribbling the basketball and about lifting the weights! Sorry I havent gotten here sooner to tell you that. I have sort of given up on lifting weights with my left because after I do any reps at all, I dont sleep for like three days. Definate difference between productive and unproductive pain and the pain I get after lifting with my left is definately unproductive. Which is a drag because I really want to work it out more.
These affected arm firsts are cool, keep postin as they happen man, and ill do the same! When they happen not if!
Evan/18/LOBPI