message boards for kids

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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shlecki
Posts: 18
Joined: Tue May 01, 2007 9:23 pm

message boards for kids

Post by shlecki »

I wss wondering if there is a message board for kids to talk to each other. My son is 11 years old and would love to know that he is not the only one out there.
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richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

Re: message boards for kids

Post by richinma2005 »

Hi Schlecki,

We could put a message board up for kids, and make it moderated and private, however, I am not sure if it would be used very much. We have one for kids 13-17, and it is underutilized. If we get enough response and interest we could try it, but I think perhaps finding some penpals through the message board may work better at that age.

So let's hear it, do parents want a MB for kids age 9-12?

rich
president ubpn


Message was edited by: richinma2005
tkirkland
Posts: 55
Joined: Tue Mar 31, 2009 9:46 am
Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
Location: Rockland County, New York

Re: message boards for kids

Post by tkirkland »

My daughter (Amaya) is only 8 but she might appreciate a message board one day soon. She enjoyed very much recently meeting children in her same condition. She never had before. It brought her more comfort then I ever could have realized.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: message boards for kids

Post by Kath »

Meeting other children builds confidence and is a great feeling for kids. I wish I had met someone else when I was young. Knowing others with my injury and sharing both our joys and frustrations has been very healing for me.

I'm not sure how a children's board would work out but meeting face to face is great for the kids, teens and even senior citizens.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
shlecki
Posts: 18
Joined: Tue May 01, 2007 9:23 pm

Re: message boards for kids

Post by shlecki »

Thanks for the reply! It would be great to get some penpals and maybe let him meet with other kids. Is there anyone in South Carolina near Columbia? It is hard being the only one or at least feel your the only one with these issues.
ironmansmom
Posts: 92
Joined: Sun Jul 27, 2008 7:15 pm

Re: message boards for kids

Post by ironmansmom »

email me and I will give you my son's email. He is 11 and has ROBPI. We live in Illinois, so sorry no face to face, but a e-pen pal would be great for my son,too.

Hope to hear from you.
AK1999
Posts: 80
Joined: Mon Nov 05, 2001 1:47 am

Re: message boards for kids

Post by AK1999 »

I for one do not trust message boards for young children. Nothing is fool proof and frankly, why put children who may already be sensitive about being "different" out there for some weirdo to take advantage of????
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: message boards for kids

Post by Carolyn J »

I believe "Pen Pals" to email are better.

Hugs all around,
Carolyn J
LOBPI/70
Carolyn J
Adult LOBPI
claudia
Posts: 1241
Joined: Tue Nov 06, 2001 12:21 pm

Re: message boards for kids

Post by claudia »

Message boards are great, but there is something really special about having a penpal.

During WWII my mom was a Girl Scout (it was new back then) and the Girl Scouts got together with their English counterpoint (and the model for Girl Scouts), the Girl Guides. They decided to start pairing the girls up, as so many children were in DP camps (displaced persons) in England. My mom was paired up with a young girl her age from Birmingham, England. They continued to write to each other (yes, snail mail) through marriage, children, jobs....and when their daughters were 9 (the age they were when they started to write) they told their girls to start writing. My first letter started like this: My name is Claudia and my mom and your mom are penpals.

Now, my niece and my penpal's older son are friends and her younger son and my daughter are friends.

I am not embarrassed to say that my mom and Rosemary's mom have been writing for 68 years, and that Rosemary and I have been writing for 36 years. She is my closest friend in the world; I trust her more than anyone else.

Thankfully, our husbands get along wonderfully and so we've done things as families and just as couples.

By the way, she still lives in England (despite my pleadings).

I LOVE PENPALS. I even think the kids should write on paper. Everyone loves mail.

Find a penpal who does not live near you. That way the visits are sooooo cool.

claudia


Message was edited by: claudia
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: message boards for kids

Post by Tanya in NY »

Pen Pals Rock! In 3rd grade, one of the projects we had to do was write a letter to another school in Tulsa, OK. I'm from Upstate NY. I've had this penpal now for almost 30 years now! It's not a frequent correspondence at times as we are busy, but we've continued to exchange information for that long, and now that facebook is around, we talk more often. Penpals are awesome!

Tanya in NY
Amber's Mom, ROBPI, 6 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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