Bilateral obpi

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Aurelia
Posts: 40
Joined: Fri Sep 26, 2003 4:36 pm

Bilateral obpi

Post by Aurelia »

There used to be a very cheerful bilateral obpi called Tina that used post here. I used to follow her postings as I have a similar injury although mine is traumatic. Anybody got any updates, or did she just stop posting.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Bilateral obpi

Post by Kath »

I still hear from Tina and she stopped posting...
I guess life got too hectic and she is still cheerful and funny.

When I get a chance I will write to her and send her you e-mail if you would like and maybe she will contact you.
I am sure you could use the contact.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Aurelia
Posts: 40
Joined: Fri Sep 26, 2003 4:36 pm

Re: Bilateral obpi

Post by Aurelia »

that would be great Kath. Good to hear she is in good form.
TinaT
Posts: 155
Joined: Sun Feb 24, 2008 3:21 am

Re: Bilateral obpi

Post by TinaT »

Hello Aurelia,

I'm backkkkkkkkkkk Thank you for missing me.

And Thank you Kath, for still thinking me "cheerful and funny". I would prefer svelte sexy and young, but I'll take funny.

All excuses aside I haven't been as "hectic" as lazy....... It feel strange to be back here after so long. I barely recognize anyone. I'll try to stay around for awhile this time. Tina the cheerful one
Aurelia
Posts: 40
Joined: Fri Sep 26, 2003 4:36 pm

Re: Bilateral obpi

Post by Aurelia »

Hello there Tina,

Good to hear from you, there are so few bilateral peeps on the board, I get worried if they disappear for a while.

Thought you might have won the lotto or something but things sound good with you anyhow.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Bilateral obpi

Post by Kath »

Tina
I will think of you as sexy and slim... If you will still think of me as ten years younger... LOL...
Notice I don't post my age anymore? It's depressing to do that, I prefer to pretend that I'm as young as I feel.
OK... as young as I would like to feel.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Bilateral obpi

Post by Carolyn J »

Kath,
I am sooo proud to have the staying power to still be here and I have earned every gray hair.

Tina, I would love to meet you--if you ever remember your "old Login" let me know so I can read some of your posts.

HUgs, :)
Carolyn J
Carolyn J
Adult LOBPI
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: Bilateral obpi

Post by Mica »

Hi! Welcome back to the boards! :)

My husband and I are raising a bilaterally-injured firecracker of a little girl (18 months old). (Firecracker may be too mild... we love her spunk!)

If you think of any advice, unique to helping a bilaterally-injured child, I would be grateful to you for sharing! I learn so much on these boards! :)

Again, welcome back!

mica
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Bilateral obpi

Post by Kath »

Mica
Well Tina can give advice because she's a firecracker.

All bpi children need to develop a good sense of humor.
I have not met a bpi injured who cannot laugh at themself and find humor in so many things that happen to us.

Kath
Kath robpi/adult

Kathleen Mallozzi
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: Bilateral obpi

Post by Mica »

Like I always say when someone asks what OBPI stands for:

One Bright, Persistent Individual!!! (Then I educate them, but I think my definition describes Aria better than the medical one!!!)
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