help???
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admin
- Site Admin
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- Joined: Mon Nov 16, 2009 9:59 pm
help???
hello everybody. i am 24 yers old and was born with brachial plexus in my right arm. i am starting to do my own research and see if there is anything more that could be helpful to gain more strentgh and rom and to help with the pain.. like maybe surgery. i cant believe at how many websites and people that have this too..wow! Growing up there wasn't very much information around. When i was younger i went to a doctor yearly at the U of M who didnt know much either. i live in south carolina and was wondering if anybody knew of a close bpi specialist. Or who i should go about contacting to begin my process. i would appreciate any information anybody has to offer.
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: help???
Kristi,
Do you see a physical or occupational therapist? That might help a lot with pain. I was having pretty bad pain in my shoulder region of my back and I talked with my OT about it and she has done ultrasound followed by deep tissue massage and I have very little pain now. It was amazing, I too was thinking about another surgery to relieve some of the pain but now its gone and I didn't have to have another surgery.
Now I am also working on ROM with my OT and during the school year I saw student OT's and we worked on strengthening. This has really helped me.
There is a medical resource directory under the resources link at the top of the page then there should be doctors listed by state.
Another thing that might help with strengthening would be the use of splints, doesn't sound like it would help with strength, but I have had several for my hand and have gained a lot of strength from them.
Good luck and I hope that your pain goes away soon, its no fun to be in pain.
Amy 19 ROBPI from MN
Do you see a physical or occupational therapist? That might help a lot with pain. I was having pretty bad pain in my shoulder region of my back and I talked with my OT about it and she has done ultrasound followed by deep tissue massage and I have very little pain now. It was amazing, I too was thinking about another surgery to relieve some of the pain but now its gone and I didn't have to have another surgery.
Now I am also working on ROM with my OT and during the school year I saw student OT's and we worked on strengthening. This has really helped me.
There is a medical resource directory under the resources link at the top of the page then there should be doctors listed by state.
Another thing that might help with strengthening would be the use of splints, doesn't sound like it would help with strength, but I have had several for my hand and have gained a lot of strength from them.
Good luck and I hope that your pain goes away soon, its no fun to be in pain.
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: help???
Hi Kristi,
Welcome. I emailed you some information, but please post all of your questions here too. There is alot of support here and there are no dumb questions!
Hugs,
Carolyn J
Adult LOBPI
Welcome. I emailed you some information, but please post all of your questions here too. There is alot of support here and there are no dumb questions!
Hugs,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
Adult LOBPI
Re: help???
Kristi:
I think to increase strength you should attempt to strengthen the muscles you already have in your affected right arm. An occupational therapist can advise you but generally physical therapists do most work with strengthening. I would definately see either an OT or PT for stretching as this did wonders for me at first. Surgery should be a last result but that doesn't mean you can't go there. I would advise therapy at first to see if that works but if not see a brachial plexus injury specialist and go from there.
Becky
Becky
I think to increase strength you should attempt to strengthen the muscles you already have in your affected right arm. An occupational therapist can advise you but generally physical therapists do most work with strengthening. I would definately see either an OT or PT for stretching as this did wonders for me at first. Surgery should be a last result but that doesn't mean you can't go there. I would advise therapy at first to see if that works but if not see a brachial plexus injury specialist and go from there.
Becky
Becky