Search found 17 matches

by Jmarcellus
Fri May 07, 2010 8:48 pm
Forum: Parents of OBPI Children
Topic: Jessica turns 8 tomorrow/ DDSO denied eligibility
Replies: 0
Views: 680

Jessica turns 8 tomorrow/ DDSO denied eligibility

On the eve of Jessica's birthday, I think back to her actual birth. We've all experienced the waiting to find out what is going on, the therapy, the Dr appts, the worrying. Now she is 8 and I still find that this journey doesn't end. But we sure know more now than we did then. She is a happy child a...
by Jmarcellus
Fri May 07, 2010 8:33 pm
Forum: Parents of OBPI Children
Topic: Long time no post, and a question about botox
Replies: 3
Views: 2015

Re: Long time no post, and a question about botox

My daughter's hand function is the same. Loss of sensation, grasp pretty good, no finger extension. She had botox years ago because she co-contracts extensors/flexors. So we tried to botox the flexors to get more extension. You lose grasp so we haven't kept doing it. She still co-contracts. We are t...
by Jmarcellus
Fri May 07, 2010 8:25 pm
Forum: Parents of OBPI Children
Topic: the wait
Replies: 8
Views: 6223

Re: the wait

Oh your post brings back such painful memories. My Jessica was also a forceps delivery. I was told that if she wasn't moving fingers after a few days she would require surgery at 3 months . In our case her diaphragm/breathing was also affected. Something even the nuerologist over looked. Every injur...
by Jmarcellus
Fri May 07, 2010 8:09 pm
Forum: Parents of OBPI Children
Topic: trial over...we lost
Replies: 9
Views: 3824

Re: trial over...we lost

Sorry to hear this. We accepted a settlement because our lawyer advised us that the jury's usually side with the Dr.
by Jmarcellus
Fri May 07, 2010 8:02 pm
Forum: Parents of OBPI Children
Topic: Sores that won't heal - Need Advice!
Replies: 6
Views: 4272

Re: Sores that won't heal - Need Advice!

My 8 yr old ROBPI also gets very bad sores only on the affected arm and hand. I went to all the specialists I could. No one had any good answers. Vascular surgeon said her circulation was fine. Dermatologist took a swab and didn't have staph. Was told just to put antibiotic ointment on it. Her finge...
by Jmarcellus
Fri Mar 26, 2010 4:57 pm
Forum: Parents of OBPI Children
Topic: Having a baby after delivering one with OBPI...
Replies: 6
Views: 2705

Re: Having a baby after delivering one with OBPI...

I'm assuming you already had the baby - so congratulations and let us know how it turned out. I wish my OB/GYN had recommended c-section with my 3rd daughter. Her two older sisters deliveries were not easy and both were stuck. Fortunately, no nerve damage. On the 3rd however, the Dr pulled with a va...
by Jmarcellus
Fri Mar 26, 2010 4:49 pm
Forum: Parents of OBPI Children
Topic: Upstate NY
Replies: 7
Views: 2331

Re: Upstate NY

I live in rochester NY and Pia worked with my daughter while she was in Early intervention. My daughter is 7 now and I welcome anyone who wants to contact me regarding BPI.
by Jmarcellus
Fri Jul 18, 2008 11:39 pm
Forum: Parents of OBPI Children
Topic: DIAPHRAGM
Replies: 3
Views: 653

Re: DIAPHRAGM

<t>My daughter had C4 rupture which paralyzed the right diaphragm ( along with several other ruptures and avulsions). She required having a diaphragm placation surgery at 8 weeks old. She hasn't had breathing problems since. She runs, jumps on the tramp, swims, screams and yells along with her 2 sis...
by Jmarcellus
Fri Jul 18, 2008 11:03 pm
Forum: Parents of OBPI Children
Topic: mayofascial release
Replies: 8
Views: 1317

Re: mayofascial release

<t>My daughter, ROBPI (age 6)has been seeing a MFR specialist for a couple of years. She has had 4 surgeries so there is quite a lot of scar tissue in the neck, shoulder and arm pit. He is trained in the John Barnes Method of Myofascial Release. He is gentle to the point where she often falls asleep...
by Jmarcellus
Tue Apr 22, 2008 11:54 pm
Forum: Parents of OBPI Children
Topic: Looking for upstate NYers?
Replies: 15
Views: 2793

Re: Looking for upstate NYers?

Hi
I live in Rochester. What Dr do you see here?
I've been going to Syracuse.