United Brachial Plexus Network, Inc.

Question/Comment:

"Maia, today we take your splintie off. We're going to Aunti Julie's pool and we'll try it very slowly ok?"

Answer:

"No thank you, Mommy"


oh well - try again tomorrow....

Fran-
At least she was polite. Score one for you and Lou. Remember: little feet take little steps.
Carrie

Maia knows it is a "big" deal and knows how to handle it best for her. Give her some time Fran. it took almost two weeks of a few hours here and there for Katie to handle 12 hours. Goodness, after about 8 she is still ready to put it back on and she fusses in the morning when I go to take it off. If she isn't responding to being ready today, just go visit the pool friends. Perhaps just watching it and remembering how much fun it is she will change her mind.

Keep me posted and good luck today

christy

christy - honest - no pressure here we figured it would take at least a couple of weeks if not more.

CArrie - I love that line 'Little feet take little steps"

Francine & Lou
I just loved the way you gave her control... It makes for a very happy kid... loved it... why rush when she is not ready? and now she feel good because you let her be in charge.... great...

Carrie loved that little feet take little steps... you sure your and artist and not a poet... great thought..

Kath

I know where you are coming from! At least she is honest. Rosalynn has inherited my stubborn streak (I was cursed by my mother who said "I hope you have kids that are just like you!" Lord have mercy on me LOL) Last week the therapist asked her to do something and she said no, my mom was home with them and told Rosalynn "you better tell her yes mam" Rosalynn quickly nodded yes and continued to mumble NO NO No...

We tried again today - she allowed us 5 minutes or so with it off after I laid her down on the table and did a sponge bath... I also put warm/hot compresses on her arm and shoulder for about 15 minutes before we sat her up and continue to compress her while she was up.

Well she is certainly winging now! YAY! (a good sign for anyone whose child had a dislocation repaired). Her shoulder is very much smaller. Her arm is very weak, she couldn't move her arm at all, but she was able to move her fingers and click her thumb in and out of joint (as she sometimes does with painful results).

She's definitely not ready yet to have it off for any length of time. She was not able to stand up - she crouched in pain. She was nauseated and went right to bed aftwards. Although it is hard watching your child go through this - I'm not worried about it - I really expected this - in my mind I thought it might take another two weeks to have it be off for a longer amount of time. Whatever time it takes, it will take.. in any case she wouldn't be going to school splintless while it is this weak anyway. And we may just have to quit gymnastics once the splint is off - gymnastics with a weak shoulder joint and arm scares me...but we will replace it with the aquatics so there won't be an empty space there.

Good luck tomorrow Nicole and Tori and all the other kids that had surgery that day! Just take your time

-francine

Francine, I'm interested in the winging you are seeing. We took Joeys brace off last week and I dont see any winging. I asked his therapist about it and she said she never heard of winging being a "good" thing. Does Maia's back look the same on both sides (ie: scapula) now? This was his second capsulodisis. We didnt see any with the first go round either. I'm confused... Thanks for your thoughts on the subject.
~~Joann