United Brachial Plexus Network, Inc.

Well, I had the EMG done on both arms. My unaffected are is ok, no carpel or anything. Dr. said the pain could be mechanical. As for the OBPI arm he said that it was pretty much status quo and he didn't see anything that would indicate that future weakness or loss of motion would be a problem. So he turned me back over to my pcp who knows nothing about OBPI. I don't know what she is going to do now but my guess is PT with someone who also knows nothing about OBPI. I just don't know what to do now. I know everyone here says see a specialist but I don't know how I can do that. I doubt I can get a referral or that my insurance would cover it. I don't think there are any near me either. And we just don't have the money to spend with the new house and baby coming. But it's BS that there isn't a problem with weakness and loss of motion cause I know my arm has been getting slowly worse. Help.

Dear Kissygoose,
When my Jill was born in 1984 it also was difficult to see P.T.'s & O.T.'s with BPI knowledge. So I did take her to the ones that did not. A good O.T. or P.T. will still be helpful. Not all are created equal, and I found some were better than others. Some tried harder, than others.

I think if it is not possible to go to one that is skilled with BPI, go ahead and try the ones in your area. It might work out O.K. A male P.T. here in my small little town told me something very useful, that I hadn't known about Jill's hand, the other's had not. Then a couple years later, when I was waging battle with my school, and IEP, he went to bat for us.

A good O.T. or P.T. still has a lot of knowledge & ideas to share. Give them a try, I did.