You've probably done this a thousand times, but maybe some people like me come by and don't really understand who they're talking to.
I'd like to know who you are, what you seek here, how often you come and post, are you all american or english?
I read in your introduction: "The United Brachial Plexus Network (UBPN) is a registered non-profit 501(c)3 organization devoted to providing information, support and leadership for families and those concerned with brachial plexus injuries worldwide." But then I mostly see posts about the US.
Myself, I am called Catarina, I am 35, I am from Lisbon, Portugal, and the mother of a 6 months old who had primary surgery in May (also in Lisbon). He is doing PT and will now start water therapy. I am a university teacher in urban planning, my husband and I are both doing our phD's in Paris which really does complicate everything a lot more. The baby's name is Sebastiao and he is in slow but steady progress. I'm sure I'll soon see his arm move
I come here almost everyday and mostly read and try to learn about other experiences. I also seek a little bit for people who might feel the same way I do and understand what this is all about.
) She has LOBPI and has not had any surgery to date but is recommended for muscle-tendon transfer in about a year. We live in the US, South Carolina. I only post under BarbH.