United Brachial Plexus Network, Inc.

Lefty
Welcome to the message boards. I am adult/obpi/Erb's
and found these message boards almost 5 years ago. I thought I was the only one with this "rare" birth injury only to discover it is not rare and there were so many other adults out there...

We have a message board for adults with this injury. Here is a link to the OBPI adult message board.

http://ubpn.org/messageboard/forum.jsp?forum=19

Kath

Hi Lefty!

Welcome. We are glad you found us.
I, too, have an OBPI. I'm 50 and have had surgeries as a child as well as an adult.

UBPN has a magazine that they publish twice a year which has lots of informative articles. I'll be happy to send you out some back issues and add you to our mailing list if you want to email me (nancy@ubpn.org) your name and address.

We hope you will find these board to be a place of support and information.

Nancy Birk
UBPN President

Hi Lefty
Welcome
My LOBPI daughter is 20 and doesn't get on the boards. I am only on over the summer. My daughter was also considered very severe. I have written about her loss and gains in detail in 2 posts, both on the General Message Boards. Back on page 14 or so WHAT IT IS LIKE LIVING WITH A DISABILITY IN THE FAMILY. and the more recent posts of THOSE THAT HAVE NOT HAD SURGICAL INTERVENTION.

I too wish there had been more help when my daughter was young, you are kind to realize how much your parents also struggled through your loss. For so many years I was the "mean old mom". Fortunately, my daughter learned quickly at age 19, that I wasn't so bad after all. In fact she comes for lunch every Friday.....so got to run. Best to you. Angela

Hi Lefty---Welcome! You came to the right place. This is an excellent place for resources & support. I've been a member of the boards for more than 5 years now, and don't know what I would have done without everyone. Best of luck!

Hi Lefty! Welcome to UBPN. This site has been so helpful to us and the people here are great. My 11 year old son is right TBPI.

I understand that dynamic. My Mom was hyper-vigilant when I was a kid. I've had to work through some of those "control" issues, but when all is said and done, it'sd nice to have someone always in your corner. Lefty

Hi. I'm 28 and have had right arm paralysis since birth. I find through research that my BPI is about as severe as it gets. I'm interested in speaking to anyone with BPI or who have kids with it. I only wish this type of support had been available when I was born. My parents would have had a much easier time. I have also has 3 surguries. 2 tendon transfers and last January I had my fingers fused. Cheers.