United Brachial Plexus Network, Inc.

Hi,
My husband and I have just adopted a little girl from China (3.5 yo) who has Klumpke's palsy. I have been able to find a lot of information adn stories of Erbs but almost nothing on Klumpke's Is there anyone here who has this injury or a child with this injury? We are doing LOTS of reading at the moment and are about to start the rounds of Drs and Physios
Karleen Gribble
Australia

Hi, My name is Christy. Congratulations on your new daughter - all of you must be so happy and excited! My daughter has Erb's palsy (damage to the upper brachial plexus - C5/C6. Klumke's Palsy is damage to the lower portion of the brachial plexus, C7/8 & T1, involving muscles of the hand and weakness of the forearm. Both are categorized as Brachial Plexus Injuries, just named differently because of which nerves were damaged. There is information on this sight and hopefully others will post that have children that have the same injury as your new daughter. Good luck to you and your new family.

Hi! Welcome and congrats on your new daughter! Klumpke's as the previous person stated is a form of Brachial plexus palsy involving the lower nerves. Our daughter was born with a complete injury involving Erb's and Klumpke's. Is her eye involved also (Horner's Styndrome)?Hope you find a doctor who can help. Whatever you do love that new addition with all your heart. LeeAnne

Karleen! Welcome and congratulations on the new addition to your family!

Here is a list of what we have here from Australia in terms of support groups...you didn't say where in Australia so I just got them all...

Brachial Plexus Palsy Support Group
Adelaide, Australia
Lyn Metcaff

Brachial Plexus Palsy Support Group
Julianne Long
129 Alexander Ave
3074 Thomastown VIC
Melbourne, Australia

Brachial Plexus Palsy Support Group
Paul Johnson
202 Townview Rd.
2170 Sydney Mt. Prichard NSW
Sydney, Australia
4johnnos@healey.com.au

Brachial Plexus Palsy Support Group
3 Georganne St.
4061 The Gap
Queensland, Australia
Mary Ann and Wayne Piercy

Also - in the resources section here:
http://www.theideabox.com/epirgdir.nsf/ ... &Count=100
there are 44 entries under Australia! maybe someone is almost next door? one never knows!

hope you can link up with somebody close by who can refer you to a doctor or therpists who have experience in this.

In the meantime - hope you stick around here too!

-francine

http://www.injurednewborn.com/
http://www.injurednewborn.com/maia/homepage.html

Hi Karleen, I just wanted to say congratulations. I have been wondering about you and your dd for awhile now. I'm Pam from the Brachial yahoogroup. ) I don't have any info re Klumpke's palsy, but I know if you do searches under Bracial plexus palsy it will bring up sites that dicuss all the BPI's. You should post to the list that your back. I know everyone would like to hear and send their congrats. BTW, Kari had her baby and is have great success with BFing thanks to your advice. )

Hi there
Our Parker has both Erb's and Klumpke's. He has almost no movement in his hand or wrist. He just started getting some movement in his thumb and pointer finger when he turned 3 ... he will turn 4 in April. He has had 3 surgeries and I think the nerve transplant is what enabled the movement we are seeing in his fingers. If you have more questions, feel free to email me!
Pam

Hi, Karleen. Nice to see you here. I've been thinking about you. When you have a chance, come say hi to the brachial egroup. Nicole has Klumpke's and Erb's. I don't think I really ever found much on Klumpke's individually, but mostly found info. on BPIs in general. Sometimes the term Erb's Palsy is used inaccurately too and is used to diagnose what is actually both EP and Klumpke's, or basically a total BPI. There is a lot of helpful reading in the Awareness 2001 section of this site. Well, I hope your visit to China went well and that you're all settling in home now. I can't remember how to spell your new daughter's name - sorry. What do you call her? Do you have a nickname for her? The support groups that Francine listed are the ones I sent you before. You'll see that one of them is for NSW. Perhaps you could start there and also ask them for contact info. for other members of the support group. Well, hope to see you on the egroup again and here too. This board is a great resource for information. Ask away and we'll all try to help you however we can. Enjoy your beautiful new daughter! Congratulations!! -Tina (Nicole's Mom) )

Hi Karleen

like Nicole, katie too is a total plexus--c5/6 ruptured, c7/8 avulsed t/1 stretch with Horner's pretty much resolved and a tremor leftover from autonomic nervous system damage. Like the others we have only found things listed under "BPI" or Erb's. I remember reading early on that if Klumpke's was there then they usually had Erb's as well..but there are always going to be exceptions.

Congratulations on your sweetie and feel free to email is you want to ask more questions. Sounds pretty good though if she is using her hand that well. We started with the nerve grafting and suppose we will be working our way down the arm as the issues arrive. Keep us posted and welcome to our neighborhood!