United Brachial Plexus Network, Inc.

I hear so many people talking about getting surgery but I don't think I would want surgery.
Are there others who opt not to have surgery ever?
I just feel like I'm the only one not pursuing surgery.

Just curious,
-Traci

If you feel that there is nothing you need to change, then why do it? Don't follow the crowd, just follow your own heart.

Traci,

I think you will actually find that most adults posting here have NOT had surgery. Whether to have surgery or not is a personal decision for an adult. While I have had surgery myself, I know it is not the solution for everyone, it was simply MY solution and what was best for me.

As well, this injury manifests itself in so many different ways because the extent of injury varies. Surgery may not be indicated for everyone.

I hope you feel comfortable here no matter what your choices or decisions. We all are learning from each other.

I think what is most important is that we have choices. For so long, we had no or little choice of whether to have surgery or not.

Nancy

Traci

I have never had surgery and while I think surgery will help some I don't think that surgery will help me to gain anything.

You don't have to have surgery it is a matter of choice or options that some have to gain more movement.
This injury is like a fingerprint each person while having the same injury has a different range of motion. I learned that when I met Nancy and Judy... while our injuries were similar we had much different motion...
I really think it is up to each person to make that choice... It is a big step
Kath

Traci:
Nancy and Kath are right - surgery is a very personal decision that is dependent on individual circumstances. One must weigh the benefits in terms of removing limitations of movement and strength versus the costs in terms of money, effort, and time spent in recovery. I had surgery when I was 13 but in 1952 BPI surgery was not very well perfected. I was told at Camp last summer that surgery could help me but was also asked the question "Are you satisfied with what you have?" Another BPI specialist has told me that although he loves to do surgeries, he wouldn't recommend it for me because of the life time of adjustments that I've made and, in his judgment, I've obviously done very well.

It's true that these forums may seem to highlight those having surgeries but I think that there are plenty of examples of BPI victims leading successful and rewarding lives without having surgery. However, I think that, especially for a young adult, the idea of surgery that could improve one's mobility and strength, mitigate the potential for overuse of the unaffected arm, and deal with self image issues need to be carefully considered. Speaking to qualified BPI medical experts would help answer questions of possible improvements and determine the costs. Should you decide to investigate surgery, obtain second and even third opinions because while some surgeons may be enthusiastic about their procedures others can be more cautious for very good reasons. Also, have someone that you trust with you to help you understand and remember the specifics of the discussion. Listen to the advice of family and friends including those who have had surgeries in these forums. Take the time to make an informed decision because as a potentially life changing decision, it is vitally important that you do so.

John P.

I met Dr. Nath about 3 years ago and he did not recommend surgery for me--although he did say he could improve my function. 10--20 %. I didn't feel that was worth the risk. If he would have told me 50%-- I would have gone ahead with surgery. It's a personal choice. Do what is right for you. Good luck. Pat

I definately agree with Nancy and Kath. We all have choices and everyones injury is different. I had surgery in Sept. 2003 and it gave me more r.o.m. and also 2 inches in length back, however, my arm was shrinking and paralyzing itself. I am only 32 and felt that it was necessary to give me hopefully 20 more years plus. Don't feel as if you have to have a surgery to be in here. That's not the case. WE love everyone weather they choose surgery or not!!
*HUGS*

Does everyone's arm shrink and begin paralyzing itself? Or does it depend on the person.
I've been using my arm less since last year when I broke my arm, because my wrist hurts when I over use it. I know I need to use it more or the outcome won't be good.

My arm doesn't look any different in size than it ever did--although I am sure I lost legnth due to the increased elbow contracture. It's a little skinnier than the other--but not anything anyone would notice. I think everyone is different depending on the exact injury--not that any of us know the exact injury.
By the way--can you see a wristbone on your erbs arm? Mine never developed. Just curious. Pat

No mine never developed either. I thought it was odd till just last month when I read that someone else had mentioned there's never developed and then I felt normal. (in the BP sense)Which is the only sense I'll ever know, and that's fine.


-Traci