Hi Frankie,
I'm 50, live in PA and the bpi is on the left side. I met
another man with bpi while doing my job search through
career links. That's a state funded project for all
unemployed people who are seeking job's. It was good
to meet someone else who understands what it is like
living with this injury. Not long after meeting him I
began to notice that there are more people around with
bpi then I had ever noticed before. I think I have
spotted ten in Lancaster County PA and I don't doubt
that there are more. Some may not like to venture out.
I know it was though for me as a child to go outside.
Some of us are not as seriously injured as others and so the
injury dosen't show but those people are around you. I've
read conflicting statistics on the internet. Some statistics say
that as many as 3 million people in the USA have bpi, but I
think the number of people with bpi is MUCH higher because
- 1 the degree of injury is so varied and therefore not all
cased are discovered and 2 - because hospitals may not want
to admitt mistakes. I understand very well how you feel but
you are not alone. I'm getting pretty curious myself about the
UBPN camp. I've never been to it before. Maybe we'll meet
at the camp in the future or some other way. In the mean
time here's my e-mail address
cdiamondstein@yahoo.com
and my yahoo group is ERBSBPP. If you want to access the
yahoo group you'll have to establish a free yahoo e-mail
address first and then click on "groups" Now in the search box
on the yahoo group page type in ERBSBPP. When you reach
my groups home page click on "join this group" and at the
bottom of the join page click submit. The message board is
worth a visit and there are some good links both on the
message board and on the links page. Feel free to post
messages and links there if you want to. Good Luck!
Cliff