our 13 week old daughter with Erbs

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
admin
Site Admin
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Joined: Mon Nov 16, 2009 9:59 pm

our 13 week old daughter with Erbs

Post by admin »

Hi everyone. Our daughter, Poppy-Leigh was born weighing 10lbs 13oz and her birth was complicated by shoulder dystocia. As a result of her traumatic birth she was born with a right Erbs Palsy. She can now move her shoulder slightly and has always been able to wiggle her fingers. Her Elbow is wherewe believe the problem to be. She cannot move it. Tomorrow we are due to go to see her consultant who will tell us what needs to be done. He will tell us the results of her EMG. Wish us good luck!!! Thanks for listening. Clare
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: our 13 week old daughter with Erbs

Post by Kath »

Clare

Glad to hear that you have already had and emg and I pray that you get good news.

I am right OBPI/adult and sorry to see your baby is injured but want to congratulate you on her birth... What a beautiful name Poppy-Leigh.
I hope all goes well tomorrow.

Kath
Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: our 13 week old daughter with Erbs

Post by admin »

Clare,

Congratulations on your new baby daughter. I am sorry to hear of her injury. It breaks my heart every time a new mom posts. My 2-year-old son has Erb's in his left arm and I (as well as everyone on this board) can understand your feelings at this time. My heart goes out to you and Poppy-Leigh.

If you want to e-mail me privately (just click on my name), I'd be happy to share more of our experience with you and how we've dealt with everything. I will tell you, though, that Texas Children's Hospital is the place to go!

Take care,
Janet
m&mmom
Posts: 1395
Joined: Sun Nov 04, 2001 9:34 am

Re: our 13 week old daughter with Erbs

Post by m&mmom »

Clare,
Welcome to the boards. I'm Cindy mom to Melanie and Matthew. We have used acupuncture and various other alternative treatments as well as surgery for Matthew's recovery. If you have any questions please ask and keep us updated on your daughter's progress.

m&mmom
Posts: 1395
Joined: Sun Nov 04, 2001 9:34 am

Re: our 13 week old daughter with Erbs

Post by m&mmom »

Forgot to add - I started a website however it's not finished yet. Please feel free to check it out www.franklinfamilybpi.com
Matt's Dad
Posts: 133
Joined: Wed Nov 12, 2003 9:39 pm

Re: our 13 week old daughter with Erbs

Post by Matt's Dad »

Welcome Janet, sorry to hear about your child.
The internet is an awesome source if info so do as much research as possible. This site is full of info. Also check out: www.injurednewborn.com



richinma,

Go Sox!!
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: our 13 week old daughter with Erbs

Post by admin »

Please get on the internet and find out all you can. The website with the most helpful information was and still is "injured newborn.com"-Francine helped me so much.
twinsxx2+one
Posts: 41
Joined: Tue Oct 14, 2003 8:55 pm

Re: our 13 week old daughter with Erbs

Post by twinsxx2+one »

Clare,

I am so sorry to hear about your daughter. My son is 7mths old and leftbpi. I wish you all the best.

Jamie
clare
Posts: 9
Joined: Wed Mar 17, 2004 5:17 pm

Re: our 13 week old daughter with Erbs

Post by clare »

id like to thank you all for your support. Today is D Day! Will post a message later to let you all know what he said. PS We live in England, so Texas childrens hospital may be just a little too far away!!
Thank you all once again.
Clare.
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