Thankyou for your prayers

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Pauline

Thankyou for your prayers

Post by Pauline »

I felt a little better today, stronger. I am convinced the prayers are helping me deal with this.

I went to an interview today, an admin assistant job, just 10 hours a week. Its for a voluntary organisation who coordinate transport for those in isolation. I did not get the job, but they called me to say i would be wasting my talent & enthusiasm, and they all felt I should be working out there promoting and campaigning, rather than just typing. they told me to keep looking for such a post.

I held it together for a 2 hour interview, I am proud of myself today.

I am not sad I applied, or that I did not get the job (someone with better IT skills got it), this has been a boost. I did not want to go when we had the news earlier this week. Glad I did.

I have my first hurdle to jump tomorrow. My brother-in-law only went & told his kids, they are the same age as mine.
I have decided my kids do not need to know, and felt it best to break it to them as we meet the challenges, starting with the point when Josh has calipers.

this is the way I am trying to view it, I will face the problems as they arise. But now the cousins want to come visit their dying cousin Josh. They were asking if hes in a wheelchair yet, and how long he has left.

I am going to talk with them tomorrow, I want to explain things from a different view:

Josh has always had this condition, he has not suddenly got ill. It affects the way he walks and runs, but that is as it always was.

I may explain that some kids with this are in wheelchairs, but is Josh? No.

I want them to forget the name, if they know it, I may refer to it as a muscle enzyme problem, most outsiders would not know this means Muscular Dystrophy.

I will also talk about their grandfather, who is in his 60's with multiple sclerosis. I will say many peolpe with that are in wheelchairs, I feared that would hapen to him too, but is he in a wheelchair? No.

I hope they will think that this really is of little significance, so not worth mentioning to my kids, but I may repeat parts of this conversation with my kids.

GULP, I hadn't thought i would have to face this just yet, but I am looking at it as practice. I do not want my kids to know the pain, they need a childhood filled with as much laughter as possible.

Pray for strength in dealing with this all, it's the first challenge of many.

Thankyou for being there. Sorry it's such a long post.

Love and blessings to you and yours.
Pauline
anonnymouse
Posts: 2
Joined: Wed Mar 03, 2004 4:03 pm

Re: Thankyou for your prayers

Post by anonnymouse »

Pauline
you are an awesome parent. Josh and your others are very lucky kids.
Take care
rachelcasa
Posts: 729
Joined: Mon Apr 21, 2003 11:45 pm

Re: Thankyou for your prayers

Post by rachelcasa »

Pauline, *HUGS* Whatever you do please do not appologize for such a long post. That is why we are all here. You need a lot of support right now. And we are all pulling for you and Josh. I think you are a great mom. You are wonderful. Keep up the good work. I know its frustrating and hard. You will make it. *HUGS*
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Thankyou for your prayers

Post by admin »

Pauline:
You all have been in my prayers! I will continue to pray for Josh and for your family to stay strong. I know you will get through this first hurdle. Good luck!
Krista
Kathleen M

Re: Thankyou for your prayers

Post by Kathleen M »

Pauline

You are in my prayers for strength and courage and of course the wisdom to choose the right words ( if there are any right words)

Please keep us all posted we truly care.
If I can help in anyway just e-mail
Kath
Karen Hillyer
Posts: 562
Joined: Fri Sep 06, 2002 1:36 pm

Re: Thankyou for your prayers

Post by Karen Hillyer »

Pauline
WICKID !!!!!!
get out there campaigning and making things better for others - you know you can do it !!!!
thinking of you
Karen xx
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