United Brachial Plexus Network, Inc.

I HAVE HAD TORACTIC OUTLET SYNDROM BRACHIAL PLEXUS
FROM A TRAMA FOR MANY YEARS NOW.
IT SEEMS AS IF I FEEL NO ONE UNDERSTANDS WHAT I GO THROUGH EVERYDAY.ITS HARD.
I HAVE HAD LUCK IN THEROPY.I AM ABLE TO DO MORE WITH MY HANDS AND ARMS.BUT ITS STILL THERE,I WOUNDER IF IM JUST GETTING USE TO THE PAIN AND LIVING LIFE THE BEST WAY I CAN.
I DO WANT TO KNOW IF ANYONE ELSE HAS FALLING PROBLEMS.I HAVE FALLEN SO MUCH OVER THE YEARS ,MANY WITCH WAS BAD ENOUGH TO BREAK BONES,EVEN MY BACK 1 1/2 YRS AGO.MY LEGS MY FEET MY WRIST MY RIBS,IM A WALK TIME BOMB.THE FALLS SCARE ME,LOL,,EVERYTHING SCARES ME.
GETTING HELP FROM THE GOV IS A JOKE,AND AS FOR DRESSING MYSELF,ITS ALL SLIP ONS,MAKES LIFE EASIER.
I WANT TO DO MY HAIR PUT ON MAKE-UP EVERYDAY,SHAVE MY LEGS MORE OFTEN WOULD BE NICE.I FEEL ALONE.TRUELY WANTING SOMEONE WHO UNDERSTANDS
THANK YOU
CHARLOTTE
19376983714

Hello Charlotte and welcome to these boards.

I had a car accident in 1991 that left me with a left brachial plexus and TOS injury. You are not alone anymore. We do understand the everyday challenges that you face because we face or have faced them as well.

Look at the bright side you have a honest reason never to have to put on pantyhose ever again! LOL

Hope to see you post more.

thank you joyce
and yes its true..i have a wonderful reason not to fight with pantyhose anymore.
im sorry about your injuries.i hope the insurence is takeing care of you and your needs.
and if i can ask a personal question.has this effected your memory at all?
i understand its your leftside.i have damage on bothsides.my memory has gotten so bad.i even tried going to adult education classes.but it seems tobe more then just educational memory loss its everything.
but hey.it helps with the things i dont want to do,i just say i forgot,lol.
thanks again hun,.it does help to know im not alone

charlotte

Yup, it has effected my memory. I am the queen of lists! If I don't write it down I am lost. Of course then I have to keep track of my lists!!! For example, I got all of the tax information we had gotten to date together a week or so ago. I remember I put it in a folder. Now, I can't remember if it was a manilla folder, hanging folder or a manilla envelope! So I have been sorting through things today trying to find the information. At least I know when I find it, it will all be together! I do feel that part of that is just trying to keep track of too many things. I have our taxes, our sons taxes and my father in laws taxes that I am trying to keep seperate. Basically I am financial advisor for three seperate people. So at times it is hard to remember which bill or who's bill I have paid!! Thankfully my son is taking over more of his things.

This injury is a learning process. You just have to learn new ways of doing every day things. They are not always second nature to us anymore. Not that we can't do them just have to figure out what works best for us to get the job done.

Hope you have a great day!

Well-tell you what. I've had tbpi for ten years. amped the arm 8 yrs ago. Still trying to find understanding. Drs. are convinced I'm a junkie. Friends are convinced I'm a sorry sob who can't deal with a simple amputation. Try to describe the pain--get called a weak pos who can't hack it.Been promised so many surgical solutions...till they get the MRI's back.Then they tell me--surprise!!!!--you have a worst case scenario bpi. Well no shit. I've known that for ten years.The irony is, if I blow my brains out today, they'll anounce a treatment tomorrow.I'm convinced that about 99.9% of us are DOOMED. I'm tired of empty promises--I'm tired of poumpus surgeons who know it all untill they see the MRI's--then they inform me that I have a really really bad case I think I made that clear going in. I'm tired of being called a drug seeker junkie asshole by the medical profession- who, by the way, ALWAYS find a way to make this whole problem MY FAULT. Like I asked to get hit by a car and live this ten years of hell.I understand. I understand that untill we get together and DEMAND ACTION ON THIS INJURY we are SCREWED. Ronin

HI HUN..IM SORRY YOUR SO UPSET,YES I UNDERSTAND HOW FRIENDS AND FAMILY CAN BE.I STOPPED COMPLAINING ALLOWED BECAUSE ALL IT DID WAS HIRT MORE WHEN THEY DIDNT UNDERSTAND.MY DAD HELPPED ME ALOT,
THE DRUGS,,,I UNDERSTAND THAT ALSO.I WENT YEARS WITH NO MEDS..WHEN I STARTED TAKEING THEM,I FELT ALOT BETTER.I TRIED TO STOP,BUT THE PAIN IS TOO BAD,
THE FIRST THING YOU NEED TO DO,TO HELP YOURSELF,IS UNDERSTAND THE PAIN IS REAL AND WE ARE THE ONLY ONES WHO CAN TAKECARE OF US,EVERYTHING ELSE AND ANYONE ELSE IS JUST A BLESSING IF THEY HELP.THE ANGER DOESNT GET YOU ANYWHERE,ITS HARD TO STOP HATEING AND FIGHTING,BUT IT IS SOMETHING YOU NEED TO WORK ON.AND SOMETIMES ITS NOT THAT DOCTORS DONT UNDERSTAND,ITS BECAUSE THERE IS NOTHING THEY CAN DO.PLEASE TRY THE SPINAL STRECHING.ITS PAINFUL BUT IT DID DO ALOT FOR ME.
I WISH YOU LUCK..BUT PLEASE DONT THINK ITS THE END OF THE WORLD,TRY HARD TO BE FARE TO YOURSELF,UNDERSTAND EVERYONE AROUND HAS NO CLUE TO WHAT YOUR GOING THROUGH.THERE JUST PEOPLE,IM SORRY.BUT I HAVE BEEN THERE,I DO UNDERSTAND.ITS HARD,AND ITS NOT GOING TO CHANGE UNLESS YOU CHANGE.