surgery
Posted: Tue Jan 15, 2002 10:12 am
hi (((friends)))
I just posted on here a couple times accidently as guest- I dont want anyone to think I am trying to be annonamous because I have promised that I always sign my name to everything- I gave Tina hugs and replied to Suzannes post that it might be just as well that she had not been to a surgeon earlier basically...which brings me to this comment
Over on another set of boards where I like to hang( http://www.mothering.com ) there was an interesting discussion about surgery for children so they could hear, and then about a young child who is a dwarf and about the bone lengthening surgery for that- (so far declined)
Particularly the hearing surgery I was impressed to see that many deaf adults were suggesting to parents that they please just love their children the way they were, that there children would not be worse off or lacking because of their inability to hear but that their life would in fact, just be a different one-perhaps enhanced-
I personally dont know...sound is a pretty intregal part of life for me- glad I dont have to make THAT decision/
and I think obviously there is a limited comparison of surgery between a child that cannot hear and a child that is faced with pain issues as many here are- so please do not perceive this as a bash to people who choose surgery- I respect each and every individual's right to choose as they see fit- and I know its the perfect choice for that person and their child-
It was also pointed out to me that this injury when obstetrical is usually a result of a birth with interventions performed in a hospital by staff scared constantly about liabilities indicating the parents have already chosen (or allowed it to be chosen for them perhaps)and are experienced in allowing or choosing medical interventions so...
it is only to be expected that the rate of surgeries would be much higher in a group like this- something those with statistical/analytical minds are already probably aware of
please know (Fran especially) I am aware there are exceptions as with everything- and obviously if you know your child has pain above and beyond the initial pain that seems to be non existant in the majority of Obpi for the most opart until later in life and surgery does not seem to help that anyways because people with surgery have pain too- sometimes it seems more- but it does seem to present quite a plausable explanation as to why so many poeople would have surgery for a 5 month old baby when not faced with immediate pain issues but faced simply with the idea that he does not have proper function of an arm- do they think that surgery for the baby will keep him from being in pain if he isnt in it already? Thats what Im told- the surgeone are saying that the chances of complications later if this procedure isnt done, are greater(discussing nerve grafting) and the chance he will recover function- how about having a life?
function of an arm on one side
LIFE on the other
it has to be a balance, people with a BPI cannot just choose one or the other I dont think- I think they have to strive for a balance, maybe that means surgery, to balance, maybe it means no surgery- ,maybe it means hours of therapy- maybe not-either way the decision must be made knowing that everyone does not choose surgery for things like...arm function- and that many believe that different abilitied enhance ones quality of life- hey- maybe the surgeries do too- Im not judgeing, just sharing my flow this AM-
peace be with yall! m
I just posted on here a couple times accidently as guest- I dont want anyone to think I am trying to be annonamous because I have promised that I always sign my name to everything- I gave Tina hugs and replied to Suzannes post that it might be just as well that she had not been to a surgeon earlier basically...which brings me to this comment
Over on another set of boards where I like to hang( http://www.mothering.com ) there was an interesting discussion about surgery for children so they could hear, and then about a young child who is a dwarf and about the bone lengthening surgery for that- (so far declined)
Particularly the hearing surgery I was impressed to see that many deaf adults were suggesting to parents that they please just love their children the way they were, that there children would not be worse off or lacking because of their inability to hear but that their life would in fact, just be a different one-perhaps enhanced-
I personally dont know...sound is a pretty intregal part of life for me- glad I dont have to make THAT decision/
and I think obviously there is a limited comparison of surgery between a child that cannot hear and a child that is faced with pain issues as many here are- so please do not perceive this as a bash to people who choose surgery- I respect each and every individual's right to choose as they see fit- and I know its the perfect choice for that person and their child-
It was also pointed out to me that this injury when obstetrical is usually a result of a birth with interventions performed in a hospital by staff scared constantly about liabilities indicating the parents have already chosen (or allowed it to be chosen for them perhaps)and are experienced in allowing or choosing medical interventions so...
it is only to be expected that the rate of surgeries would be much higher in a group like this- something those with statistical/analytical minds are already probably aware of
please know (Fran especially) I am aware there are exceptions as with everything- and obviously if you know your child has pain above and beyond the initial pain that seems to be non existant in the majority of Obpi for the most opart until later in life and surgery does not seem to help that anyways because people with surgery have pain too- sometimes it seems more- but it does seem to present quite a plausable explanation as to why so many poeople would have surgery for a 5 month old baby when not faced with immediate pain issues but faced simply with the idea that he does not have proper function of an arm- do they think that surgery for the baby will keep him from being in pain if he isnt in it already? Thats what Im told- the surgeone are saying that the chances of complications later if this procedure isnt done, are greater(discussing nerve grafting) and the chance he will recover function- how about having a life?
function of an arm on one side
LIFE on the other
it has to be a balance, people with a BPI cannot just choose one or the other I dont think- I think they have to strive for a balance, maybe that means surgery, to balance, maybe it means no surgery- ,maybe it means hours of therapy- maybe not-either way the decision must be made knowing that everyone does not choose surgery for things like...arm function- and that many believe that different abilitied enhance ones quality of life- hey- maybe the surgeries do too- Im not judgeing, just sharing my flow this AM-
peace be with yall! m