New family with BPI

[Shelly]

Baby girl 2mon. old with right BPI caused by OBG.

[admin]

I am so sorry for your child. My son Zak is 81/2 months old and just had his first surgery last month. He has had 2 EMG's. One at 3 months and one at 6. There was little improovement but some since the first. Our specialists here in minnesota are more reserved so they did his surgery at 71/2 months. We would of not of gotton the last few results if we did the surgery sooner. There are people you can talk to that deal with this. Feel free to contact me as I have an infant with this also caused by the doctor panicking. It is sick and I am fed up that she can still deliver babies. Good luck w/your baby. Ann

[SusanLynn]

I am so sick and heartbroken to hear about your baby. Our baby has LBI erbs palsy. She is almost 7 months old...we just found out last week. Was your baby's clavicle broken? Did she have large bruises at birth? How did you find out at 2 months? How is she?

Veronica has an abnormal mass in her entire shoulder area that is causing pain. I don't know if we can treat her Erbs with this thing in the way. Have you given your baby an MRI? What tests are your doctors talking about doing?
I feel like I have a huge boot stepping on my chest every day...I need to help my baby...and I don't have a plan. Today is Sunday. I am going to page the doctor. I want the results from her CT scan.
Please keep me abreast on your little precious sweetheart. I am available anytime for support. I am also seeking support, prayer, and strength.
Please let me know what you learn.
sending love,
Susan

[Susana]

Shelly, you should post this under the general message board over there most the moms with obtetrical bpi children post.
Good luck,

Susana