Want to know about pain issues

[Savannahsmom]

Hi! I am mom to 2 1/2 yr. old with ROBPI. And I am just really wanting to know from teens and adults who were born with this about pain issues. Is it something that is constant or does it come and go? As of now, my daugther gets some kind of shooting pains occasionally and I have to rub her arm to help her. Sh has had primary, Mod quad, and we are scheduled for the CAPS and bicept lengthenng next summer. Anything you all can tell me so I can help her is appreciated. Thanks! Heather in KY