cold, touch & lights and loud noise
Posted: Tue Sep 09, 2003 8:36 pm
When Dr. Belzberg gave us his talk on pain management and issues relating to bpi injury he explained why some of us do not like to be touched on our bpi arms.
Touch to most is just touch on the bpi arm a pain message is sent to the brain. It was an eye opener for those of us who have this issue. It is great to have someone explain the medical reason for our reactions to simple touch on bpi arm. I now understand that this is a reality not unique to me. As a child I would get so angry if some one tapped me on the arm and over react sometimes I would hit them because to me it felt like an attack. I understand that I had to learn to control my reaction to touch and as I matured I have somewhat. But only because others did not understand and would react to my ouch with annoyance. Statements like "gee I hardly touched you and whats the big deal" were their response when I told them not to touch my arm... that includes my husband who just did not understand it either. I hate it when any one touch's me on my right arm while talking to me or to get my attention because the message my brain receives is Pain instead of -- gentle touch. It is so annoying when people do this and react insulted when asked to stop touching your arm... but now I am ARMED with information as to why I feel pain when I should feel touch... that made camp worthwhile.
I wonder if any of our medical experts have notes on the exact explanation.
My arm is freezing even when I am working or typing and especially when I am asleep.
I hated the circus and flashing lights and loud noise when I was a child. I ducked out of going to the circus with my kids... I suggested they go with their Dad just to spend time alone with him.
When my friends went to Rock and Roll concerts I was not allowed to go and, as stubborn as I was, I never fought my Mom on it. It was a great excuse not to go with my friends without feeling silly. Because I did not understand why I disliked being in large crowds and at concerts it just made me so uncomfortable. Now I understand. Of course over the years I avoided them and as we mature it is acceptable to say we just don’t like them. But as a teenager who loved music it was more difficult.
And this is all bpi related.
I wonder if the lights and hating the flashlights at night is related to having T1 injured causing Horner's? At the bonfire I had to get my husband to stand next to me to block some of the lights. I wanted to have a melt down but am too old to do it! I found it quite overwhelming.
I understand that many of the children have the same problems and I was wondering if it is only the ones with Horner's or all of the kids?
Kath
Touch to most is just touch on the bpi arm a pain message is sent to the brain. It was an eye opener for those of us who have this issue. It is great to have someone explain the medical reason for our reactions to simple touch on bpi arm. I now understand that this is a reality not unique to me. As a child I would get so angry if some one tapped me on the arm and over react sometimes I would hit them because to me it felt like an attack. I understand that I had to learn to control my reaction to touch and as I matured I have somewhat. But only because others did not understand and would react to my ouch with annoyance. Statements like "gee I hardly touched you and whats the big deal" were their response when I told them not to touch my arm... that includes my husband who just did not understand it either. I hate it when any one touch's me on my right arm while talking to me or to get my attention because the message my brain receives is Pain instead of -- gentle touch. It is so annoying when people do this and react insulted when asked to stop touching your arm... but now I am ARMED with information as to why I feel pain when I should feel touch... that made camp worthwhile.
I wonder if any of our medical experts have notes on the exact explanation.
My arm is freezing even when I am working or typing and especially when I am asleep.
I hated the circus and flashing lights and loud noise when I was a child. I ducked out of going to the circus with my kids... I suggested they go with their Dad just to spend time alone with him.
When my friends went to Rock and Roll concerts I was not allowed to go and, as stubborn as I was, I never fought my Mom on it. It was a great excuse not to go with my friends without feeling silly. Because I did not understand why I disliked being in large crowds and at concerts it just made me so uncomfortable. Now I understand. Of course over the years I avoided them and as we mature it is acceptable to say we just don’t like them. But as a teenager who loved music it was more difficult.
And this is all bpi related.
I wonder if the lights and hating the flashlights at night is related to having T1 injured causing Horner's? At the bonfire I had to get my husband to stand next to me to block some of the lights. I wanted to have a melt down but am too old to do it! I found it quite overwhelming.
I understand that many of the children have the same problems and I was wondering if it is only the ones with Horner's or all of the kids?
Kath