Anyone want to share TES experience? How many hours logged? Results?

[Francine_Litz]

Maia has logged 3687 hours in 3 years.

We do not use it all the time- we only use it when her eczema allows us to. Could be 2 months on and 2 months off.

We saw improvement in 6 weeks with fluidity of motion.

We've seen a great increase in bulk in the last two years which we saw on the MRI & CT scans.

Maia has swelling issues in her affected arm (lymphedema) (this is why it looks normal sized or bigger rather than skinnier than the other one - more common) so when we use TES, her swelling is greatly reduced. And when she is NOT using TES her swelling is present. This is huge proof to us that it is doing it's job of increasing circulation.

We see TES as a very long term modality. Because of Maia's swelling issues it might even be a forever concept. We'll cross that bridge when we get there.

We will be starting NMES in 2 months to start strengthening what the TES has built up.

Maia has weak triceps and a weak shoulder girdle - so that's what our placements are.

[Mary1]

look my muscle definition http://huntermt.com/Wet2001/pages/IMAGE041.htm

Mary

[Kathleen M]

OK... does that machine have a timer on it...

Francine enter this in the baby book... LOL

Kath

[LeeAnne]

Kathleen it actually does. Mine tells me each morning how long it has been on - usually anywhere from 600 to 800 minutes. BUT I never figured it up accumalitivly like Francine.

[Francine_Litz]

when you turn ours on - the number shows up....

they said it's not supposed to go past 999 hours but whoops - WRONG! hahaha

[Francine_Litz]

ps - it's not actually a lot of time--- we've taken a LOT of time off with the eczema...3 years..yaknow?

[karen r]

Elizabeth has logged 5000+ hours in 2.5 years. The longest break she took from it was while on a 2 week camping trip last summer. I gave her a vacation from TES!
Within 6 weeks--as a 2 year old--we saw an increase in fluidity of movement. Now we see increased strength, bulk. We also did NMES for 2 years (taking a break from that) so that also contributed to improvement.