Panicking need to vent

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Panicking need to vent

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My 18 month old daughters pt has just recommended that she see a Dr because her head is an abnormal shape but has been trying not to tell me much. she just said my daughters scull bones may have fused together too soon. After going to this pt for over a year now she should know me better than to think she can give me half a story and i wont bend over backwards to research it. Research is how I found out about Bpi. So based on the info from the pt and the way my daughters head looks I suspect that she has metopic craniosynostosis' Of course I have to wiat for an appointment with the pediatrician before i can know for sure but in my experience those gits never tell me anything im on my 3rd pediatrician now. so i will be demanding that my daughter has a CT scan. Metopic craniosynostosis can cause pressure on the brain and the abnormal shape can get worse,but surgery can correct it. So here we go again 1 year post primary surgery my daughter is doing so well with her arm it looks like she wont need any more surgery on her arm then BINGO another problem instead, What has my poor little angel done to deserve this. Last Christmas was spent taking care of her after her surgery and my husband was so unsupportive all my friends and family live thousands of miles away so I was completely alone. and i dont want to have to go through this allover again by myself. I feel so useless just last night i was saying how i would like to beable to give birth naturally just to be able to do it right next time but didnt want to risk another bpi. craniosynostosis is hereditary so i feel like maybe i should just give up on the childbirth thing altogether.I really could use some friendship right now.
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