UPDATE ON JOCEY'S SURGERY, SHE IS NOT AGREE WITH THIS WHAT WE COULD DO?
Posted: Fri Dec 21, 2001 2:25 pm
Hi Tina and Francine I want to said was a pleasure for me to meet both of you in person. We do not have enough time to share and was a critical day for everybody. Both of you are wonderful persons and yours husbands too. How are the girls doing? I hope everything is going well with the girls. Francine: Do Maia feel better with the position of the new cast done at the hospital? Sorry, I had problems with the computer. We sent it to the warranty service. It took almost two weeks.
Jocey is getting me crazy, she is asking for the photos of your digital camera. She said each time I turned on the computer Mami when I will see the computer photos from Maia's mom camera?
Jocey's surgery will be January 21. The EMG don't show enough comparing it with the last one done two years ago. That means the only thing could help her at this point will be tendons and muscle transfers. You saw her arm and for be a total avulsion from c5 to t1 she is doing wonderful. We do not know how to pay for all what the Drs has been doing for our Pretty Butterfly.
We are very concern with the scars. I has been explaining her what will happen and also Dr. Klebuc was talking with her and he told her after this surgery she will be able to hold a cup of water and when she grow up she will be able to turn on the car with the help of both arms. You saw her, she think is a teen with only five years. But she told us no, "I do not want any more surgeries". Maybe could be she still remembering her last surgery who was four months ago.
I will like she meet another kids of her age with the muscle transfer done to the wrist it will be more easy to prepare her. I called Angel and I explained her what is going on. She told me will contact another parents with kids who had the surgery done and will give them our phone number to contact us.
I do not know how to explain her about the scars on her leg and arm after this surgery. They will remove a thin piece of skin from her leg to cover the muscle, additional to two other scars on her leg too for remove the muscle. On her hand she will have one scar over the inside side of the wrist and the hole will be near to the inside side of the elbow. Dr. Klebuc told us this hole could be closed with plastic surgery around six month after this surgery. He told us will done to fallow up the grow of the muscle implanted.
We have an appointment with Dr. Nath Monday January 14 and I will ask him if they have to leave it open always for this kind of surgery. I do not know how will be the psychological impact from this surgery on her behavior. Around one year ago she was hiding her arm. I asked her why she did it? Because she have a beautiful arm. We though maybe was comments from other kids at school or all the adults you found each time you go out from home. Well we succeed that step talking and explaining to her how she could teach to other persons who do not know about this injury. Now when somebody ask her if she fall down or said those incredible comments she answer them explaining what happened to her arm. Now she enjoy to see them like ignorant persons who have to learn a little bit. Also she said when grow up want to be a doctor to help other kids. She always talk and think like an adult. That is why the Drs decide to do this surgery now. They usually do it when kids are six years or older. Now I'm scare about how she will feel and how will be her behavior. Please help me. Do you know about any other psychologist who work with braquial plexus kids additional to us the moms who have brachial plexus kids? Thanks, Ivelisse
Jocey is getting me crazy, she is asking for the photos of your digital camera. She said each time I turned on the computer Mami when I will see the computer photos from Maia's mom camera?
Jocey's surgery will be January 21. The EMG don't show enough comparing it with the last one done two years ago. That means the only thing could help her at this point will be tendons and muscle transfers. You saw her arm and for be a total avulsion from c5 to t1 she is doing wonderful. We do not know how to pay for all what the Drs has been doing for our Pretty Butterfly.
We are very concern with the scars. I has been explaining her what will happen and also Dr. Klebuc was talking with her and he told her after this surgery she will be able to hold a cup of water and when she grow up she will be able to turn on the car with the help of both arms. You saw her, she think is a teen with only five years. But she told us no, "I do not want any more surgeries". Maybe could be she still remembering her last surgery who was four months ago.
I will like she meet another kids of her age with the muscle transfer done to the wrist it will be more easy to prepare her. I called Angel and I explained her what is going on. She told me will contact another parents with kids who had the surgery done and will give them our phone number to contact us.
I do not know how to explain her about the scars on her leg and arm after this surgery. They will remove a thin piece of skin from her leg to cover the muscle, additional to two other scars on her leg too for remove the muscle. On her hand she will have one scar over the inside side of the wrist and the hole will be near to the inside side of the elbow. Dr. Klebuc told us this hole could be closed with plastic surgery around six month after this surgery. He told us will done to fallow up the grow of the muscle implanted.
We have an appointment with Dr. Nath Monday January 14 and I will ask him if they have to leave it open always for this kind of surgery. I do not know how will be the psychological impact from this surgery on her behavior. Around one year ago she was hiding her arm. I asked her why she did it? Because she have a beautiful arm. We though maybe was comments from other kids at school or all the adults you found each time you go out from home. Well we succeed that step talking and explaining to her how she could teach to other persons who do not know about this injury. Now when somebody ask her if she fall down or said those incredible comments she answer them explaining what happened to her arm. Now she enjoy to see them like ignorant persons who have to learn a little bit. Also she said when grow up want to be a doctor to help other kids. She always talk and think like an adult. That is why the Drs decide to do this surgery now. They usually do it when kids are six years or older. Now I'm scare about how she will feel and how will be her behavior. Please help me. Do you know about any other psychologist who work with braquial plexus kids additional to us the moms who have brachial plexus kids? Thanks, Ivelisse