United Brachial Plexus Network, Inc.

O.k. Ladies and Gentelman we are starting. I am collecting info to send to OPRAH!!! Please send pics, letters, poems and anything else you can think of. We need the simpathetic stuff, as horrible as it sounds. You know, like just after birth pics, EMG, post OP. Anything you can find. Remember you will not get these back, so send me copies. We can do this together and make a difference.
Ashley

Mail to:
Ashley Williams
4743 Silverlake Dr.
Sugarland, Tx 77479

you can always call me at 800-404-1042

Thanks for the support and wanting to do this as much as I do!!!!!!

Another thought...
Birth pics, if they are anything like my daughter, bruised and basically awful looking that will grab their attention. I look forward to gathering this info. Also if anyone is in the Chicago area please e-mail me , we also will need a superb way to deliver this enormous package!!
Thanks,
Ask

bringing to the top!!!

I think I'll send a pic of all my son's braces as well

My husbands brother works for Oprah. I can get the stuff to her and possibly in her hands if you want me to go forward with this stuff. Just give me an idea as far as date as to when we can get this "package" to her. I am more than willing to use our inside connection to get this done if possible.

Karen,

This is WONDERFUL news on the Oprah thing!! Maybe if we can get our stories written and sent to your husband's Brother, he could get that to Oprah. Please let me know, as I'd be more than happy to send you what I have, and my story, as well as pictures of my son. It wouldn't hurt to have a lawyer on the show as well to discuss the malpractice end of this, and maybe put a stop to this $250K cap garbage!!

Plese let me know if you want me to forward to you what I have amassed in my very short time in acting on this.

Thank you and God Bless,

John

Everyone please refer to the initial post and continue to send the info to me. Karen and I will be in contact with each other. I will do all of the collecting and then get the packet to her. So gather and send, send, send!!! This IS really happening!!!
Thank you,
Ashley

Hi Ashley,
I have all of my materials together for my presentation on the 8th. Would you like me to mail you my packet of info? Also, I might video tape the presentation. Would you like a copy? I put together a nice time line of Bradley with pictures and captions showing pre- and post-op pics as well as the different splints he has been in so far. Maybe actually seeing video footage might help.
Thanks,
Allison

I have the video that we made to send to TCH to determine whether or not my son needed the primary surgery. It shows that he has pain and it shows the really pink, tender skin that they get under the arm from lack of movement; in his case, the internal rotation is really bad, so the skin doesn't breathe. Is this something that you might want to send to Oprah? If so please let me know and I will be happy to send it.

Allison, who is your presentation? I'd love a copy.