Miami Children's Hospital
Posted: Mon Nov 18, 2002 7:29 pm
First my two questions...
1) Has anyone had surgery at Miami Children's Hospital. If so, any tips or stories to share? Has anyone used Dr. John Grossman? If so, any thoughts? Is anyone on this board going to be there the second week in December?
2) In general, are there any tips for traveling (Northeast to Miami) to and from BPI surgery? Any tips on how he can sleep comfortably and travel? How soon after surgery/release from hospital should we get back on the plane? I believe Alex will have a "statue of liberty" cast. We're also bringing our 7-year old daughter (very jealous) and we're not sure how she'll handle the surgery/trip. Any feedbac in these areas is greatly appreciated.
Here's Alex's story:
My son, Alex, is currently 3 years and 4 months old. It was a difficult delivery and he was born with left OBPI. His arm was totally flaccid for a good period of time. He has Erb's and Kulmpke, but not Horner's. Like some others on this board, our local orthopaedic surgeon sent us for some diagnostic tests but the approach was very slow and passive. There was a lot of "wait and see" advice.
We did (and still do) a lot of therapy and he has made some progress. I only wish I had found (and understood) this board and the National Brachial Plexus/Erb's Palsey Association (http://www.nbpepa.org) sooner.
We all have so much in common with our past experiences and our future plans. I look forward to hearing and sharing with the members of this board. I hate to "double-post", but I'm not sure if the general board or the OBPI board is the best place for this e-mail.
1) Has anyone had surgery at Miami Children's Hospital. If so, any tips or stories to share? Has anyone used Dr. John Grossman? If so, any thoughts? Is anyone on this board going to be there the second week in December?
2) In general, are there any tips for traveling (Northeast to Miami) to and from BPI surgery? Any tips on how he can sleep comfortably and travel? How soon after surgery/release from hospital should we get back on the plane? I believe Alex will have a "statue of liberty" cast. We're also bringing our 7-year old daughter (very jealous) and we're not sure how she'll handle the surgery/trip. Any feedbac in these areas is greatly appreciated.
Here's Alex's story:
My son, Alex, is currently 3 years and 4 months old. It was a difficult delivery and he was born with left OBPI. His arm was totally flaccid for a good period of time. He has Erb's and Kulmpke, but not Horner's. Like some others on this board, our local orthopaedic surgeon sent us for some diagnostic tests but the approach was very slow and passive. There was a lot of "wait and see" advice.
We did (and still do) a lot of therapy and he has made some progress. I only wish I had found (and understood) this board and the National Brachial Plexus/Erb's Palsey Association (http://www.nbpepa.org) sooner.
We all have so much in common with our past experiences and our future plans. I look forward to hearing and sharing with the members of this board. I hate to "double-post", but I'm not sure if the general board or the OBPI board is the best place for this e-mail.