United Brachial Plexus Network, Inc.

Hello,

I was wondering if there are any canadians who are directly/indirectly affected by brachial plexus injuries who contribute to this message board....and if so I was wondering what type of canadian organizations/aid/support groups are available you are receiving with regards to B.P. injuries. Any information is greatly appreciated!!!

Anita

Hi Anita,

click on the link for 2002 Awareness and that will take you to some other options, at the bottom is a box with world wide support groups and click on Canada.

Good luck,
Tami Schenc
Phoenix AZ

Hi Anita, we live in BC, where are you located? I will send you an e mail although I do not have much to tell! LOL

lenni

Hi Lenni!

I live in Kingston, Ontario.
I would really appreciate an email about anything that you have to say!

Hi Anita - here's the support group listing we have for Canada (it's found at http://ubpn.org/awareness - worldwide support groups)



Erb's Palsy Support Group
71 Terrace Avenue
L3C 6K1 Welland
Ontario, Canada
Joanne Boyce

Canada - West Coast Erbs Palsy Support Group
Kim Lane
#328-5411 208th Ave
Langley, BC V3A 6X6

Brachial Plexus/Erb's Palsy Support Group
Albita Perez-Zuniga
35 Letty Ave.
Brampton,Ontario
L6Y 4T3
(905) 452-8202
albita@interactive.rogers.com


I hope that one of the groups is closeby to you and that you can connect!

Take care,
francine
http://www.injurednewborn.com
http://www.injurednewborn.com/maia/homepage.html

ps - check out this area of this site - there's a lot of information in there

http://ubpn.org/awareness

resources

Hi!
I don't post that often, so you may not be too familiar with me. Let me tell you a bit about myself.
I am from southern Alberta. I am 22 yrs old with a Robpi. I've only ever had surgery on my affected arm to remove a constriction band. I am right now seeking for surgery on my affected hand.
I am not involved with any support groups, as there are none in my area. Feel free to email me.
Erica:o)

Hi Erica,

Thank you for replying. How long have you had the injury for? Do you use any assistive devices? Are you working with a physiotherapist? If so, what would be the best advice you could offer a student in that field?

Anita

We're in Nova Scotia - our son was born in July, 2000 (robpi) and had nerve graft surgery at Sick Kids in Toronto in May, 2001 (C5-C8). You can e-mail me directly if you think I might be able to help with anything ... I don't normally follow this board.
Carla

Hi!
I recieved the injury at birth, so I have had it all my life(22 yrs). I weighed 13lbs 9oz.
The only assistive devices I have are my two splints, which I rarely use because I find them uncomfortable when I want to move around.
I was working with a physiotherapist. They put me on home exercises. I find it better for me personally to have the therapist do the manipulations for me. I don't get as discouraged about my arm that way.
My best advice is to go easy on the children. I had an awefull experience of PT as a child. They pushed my arm beyond it's limit. If a child says that what your doing hurts, listen.
I think thats about it for now.
Erica:o)