United Brachial Plexus Network, Inc.

Hello!
I am new to UBPN. I was so excited to find you. I felt so isolated. 2 years ago I had a orthoscopic shoulder stablization followed by a Supraclavicular Brachial Plexus Neurolysis 6 months later. I have now been told that what I need is an Infraclavicular Brachial Plexus Neurolysis to relieve my continued symptoms. The surgeon that has done these 2 surgeries on me is considered extremely aggressive. He is also considered very controversial. I have had multiple problems with him personally, not to mention a punctured lung from one of his injections. I am looking for other Docs that perform Infraclavicular Brachial Plexus Neurolysis.

I currently have an abnormal MRI, done by Dr Tsuruda, the world renown Brachial Plexus radiologist, abnormal electrodiagnostics, and loss of function in the hand and elbow, with swelling and discoloration. I have a specific spot about 2" below the collar bone that is chronically sore and swollen, and I can reproduce symptoms in my hand and arm when I push on it. At times I have 80% loss of function 50% of the time.

I am a chronic pain patient from all of this and the drugs are tearing my guts apart. This whole issue seems to be extremely controversial. My current surgeon has performed 400 upper (supra) brachial plexus and 23 lower (infra) brachial plexus neurolysis. He is an outstanding surgeon, but I do not feel that I can continue with him because of other problems.

I would appreciate any input from anyone who has had lower brachial plexus work done or anyone who knows of other doctors that do this.

Thank you very much,
Flowerchild

well first off I have to compliment you on your name
then I might refer you over to the adult board where they often have conversations(well they used to, I havent been there for a while and the WILD children over in England might all be too devaststed from their recent gathering)regarding pain and perhaps you could get info thru email privately regarding different surgeon options?You lost me with the surgery titles because Im a mom and I have only researched those surgeries applicable in the first 5 years of Obpi but blessings and luck to you- if you would like to email me I can be found for a shoprt few days I hope at marymaidenw6@yahoo.com and I dont know about your orientation but I have heard alot of people get pain relief from mother nature instead of those nasty man made narcotics...Im sure it might not be enough for you but...if the narcotics are getting to your gut-somethings gotta give- this I know a little about too blessings,mary