United Brachial Plexus Network, Inc.

Hello, all! It's been a while since I posted. It's been a rough summer for our family. I was very ill...in the hospital for 2 weeks and still recovering...and other stuff. But I wanted to say hi to all again. Caleb saw Dr. Hentz again at Standford Medical Center and we are doing surgery. He will be having, I think, what is called the MOD QUAD at TCH. Dr. Hentz said that there goal is to make Caleb's external rotation of his left arm as loose in PROM as his right while on the operating table. I don't think they'll be doing any work on his nerves, though. He did say that he will be taking Caleb's Lattisimus Dorsi (SP?) and turning it into an external rotater.

Since Monday I have been on BPI overload. I think I need to step back and take a breath. It's hard to step back. They still haven't given me a date for the surgery.

Francine, I got a lot of information off your website about what to expect for Caleb. Thank you. And if any one else has any more information for me that might be helpful please let me know. I am into research mode...just wanting to know everything I can possibly know and more about what Dr. Hentz will be doing for Caleb.

Thanks,

Kari

Kari- very sorry to hear that you have been under the weather and very sick actually. Are things on the up and up now? I hope so. Will keep you in my prayers.

Kari, I have a section on my website for parents who take their children to bpi clinics around the world - go in there and see.... I think I have three of those pages now and would like to add as many others as possible.

Would you like to have a page about your experience and Caleb's experience with Dr. Hentz and Stanford? All you have to get me is pictures and text and I will do the rest. It's invaluable to other parents going there and to those considering to go there. I hope you'll take me up on it.

http://www.injurednewborn.com/maia/otherlink.html

Let me know when you have a date- Maia and I say nightly prayers and we will include Caleb.

take care,
francine

Thanks, Francine. I would be happy to try and get you the pictures and text. I'm excited also that Caleb's therapist will actually be watching the surgery. I'm hoping she might be able to take some photos. But we will see.

Kari

Also, how long is the hospital stay at TCH? At Standford Caleb will only have to stay overnight. I was amazed that that was all.

Kari

We have always stayed two nights but I know others have stayed one night.