United Brachial Plexus Network, Inc.

Hi All,

I have a BPI injury C5 to T1 avulsion from motor accident less than 10 years ago. Some nerve surgery was done at time of accident but pain has not subsided. The pain is not constant but comes in waves as is the case for a lot of people. I am now strongly considering DREZ as the sleepless nights are catching up on me and affecting my general health.

I would be grateful to be able to speak to people who have had DREZ or alternatively if you can provide a contact I can speak to.

Having searched the forum and online in general there are many old threads but nothing current.

I am based in Europe.

Thanks

Samuel,

Same here. Injured 14 yrs ago and the sleepless nights have cost me considerably and is not gettinbg better.

Here's an old thread with new input from DREZ patients on Facebook:

https://www.facebook.com/groups/2256211 ... 174489597/

You may have to join the group "Brachial Plexus Injury Awareness" first to be able to read the post. Go to the last 20+ comments for the recent dialogue.

I'm looking at getting to Johns Hopkins to see Dr Alan Belzberg.
https://www.youtube.com/watch?v=PYRO1p- ... be&t=1m22s

Conquering Pain | A 40-Year Journey
https://www.youtube.com/watch?v=_kpqLISRVTs

I'll report back with what I end up doing. Please do the same if possible.

Good luck!

Christopher