United Brachial Plexus Network, Inc.

Let me preface with my injury. I'm a 24 year old male.
NSFW GORE






Dec 3rd 2013 I was snowboarding, took a tumble, and sat up with my entire left arm on fire and numb. Many of you might know that feeling.

Just got done with my 3rd EMG nerve study, and the supraspinatus and axillary nerves are still producing 0 motor unit functions. Everything else is still working fine, fortunately. However, infraspinatus, supraspinatus, and deltoid function is non existant, so now it's time to look for surgery.

Should I be looking for a nerve transfer? Nerve transplant? What hospital? I'm looking at Mayo clinic right now. Fortunately I'm still covered under my mom's insurance because I'm a full time student.

Before I got hurt, I was in elite condition and benching 300 pounds, and overhead pressing over 160. I'm terrified I'll never return to function, let alone the strength that I had. Like everyone else, I want to be as normal as I can. I appreciate the input and help. It's a constant war of staying positive and wanting to fight and battle and struggle.

Dude!

1. In a way, you are lucky to have such a "clear cut" injury. Hopefully no avulsions, and hopefully only C5/C6 is affected. You may be a good candidate for a nerve graft (basically, a repair, instead of transferring/repurposing other nerves).

2. Stop wasting time, seriously. Call Mayo today. They will not do nerve grafts/transfers after 6 months, and you're almost 4 months out.

3. You may get good or even very good function back, but 100% is unlikely, I'd think. You're lucky that it wasn't much worse, and C7/C8/T1 are seemingly unaffected. Stay strong, man. Keep us updated.

4. Call me (or email), I've had a recent injury too and have learned a ton. I will PM you my number/email. I've been to UPenn, Hospital for Special Surgery in Manhattan, & Mayo. (Go to Mayo if you can.) Where do you live? You might have other local options too.

Alex

Agree 100% with everything Alex, he said what you need to know, especially on point #2.

On it now! Already getting records from the variety of hospitals and doctors to send to Mayo- every hospital has the request for release of information and already triaged with Mayo. Found out my insurance (FORTUNATELY) covers Mayo as well.

Awesome! Do it.
In my book they are the best. Great that you're insurance covers them. They are outstanding.

akmetal wrote:On it now! Already getting records from the variety of hospitals and doctors to send to Mayo- every hospital has the request for release of information and already triaged with Mayo. Found out my insurance (FORTUNATELY) covers Mayo as well.

Just thought I'd post an update. Mayo accepted me and I have my nerve study with them on May 13th, I meet their BPI team on the 14th, and tentatively surgery on the 15th. So extremely excited and grateful.