United Brachial Plexus Network, Inc.

My name is Alex, me and my boyfriend Israel, have a wonderful son Ezekiel who has BPI. I would love to talk/meet up with other parents in my area. My son is 21 months old now. No Surgery so far. Going to see about a muscle/ tendon transfer when he is two... comming up very soon... SCARYYYY!!!!

I live in the tampa area. im an adult with bpi but I have a 4yr old daughter he could play with while we chat.

Im and adult BPI as well since 2004. I live in lakeland but work in the tampa area. I had nerve transfers, I recommend them. But I dont recommend any fusion serguries. I still ride motorcycles, build tuner cars, drive a manual transmission, ect... The doctors recommended that I get a shoulder and wrist fusion and a tendon transfer. If I would have, I would not be able to do any of the things I said above. The best thing to do is to work on learning techniques to help your child learn to live with his disability. And dont think of it as a disability, its just that your child sometimes has to do things a lil differently. Myself, most people dont even know that Im disabled and those that do completely forget about it.

Good advise "stunter"! ... "The best thing to do is to work on learning techniques to help your child learn to live with his disability. And dont think of it as a disability, its just that your child sometimes has to do things a lil differently. Myself, most people dont even know that Im disabled and those that do completely forget about it."

"gramma" Carolyn J
LOBPI/75