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possible dissolving

Posted: Thu Oct 03, 2002 11:24 am
by nbpepa
With Deep regret and sincere apologies, the National Brachial Plexus/Erb's Palsy Association, has found that it may have to dissolve. Unfortunately this is due to lack of volunteer involvement. We will keep you updated to future progress. If you have any questions, suggestions, or comment, please let us know.

At this time we will be forwarding requests for information to the United Brachial Plexus Network.

Sincerely,

Brenda Copeland-Moore
National Brachial Plexus/Erb's Palsy Association, Inc.
P.O. Box 23
Larsen, WI 54947
info@nbpepa.org
http://www.nbpepa.org
Fax: 209-644-5813

Re: possible dissolving

Posted: Thu Oct 03, 2002 11:29 am
by francine
Brenda - I am very sorry to hear this. I know you have worked so hard for your organization.

Are you going to keep the site running?
-francine

Re: possible dissolving

Posted: Thu Oct 03, 2002 12:03 pm
by admin
I'm sorry to hear this. Can we try to help you with recruiting volunteers? If so, what is needed to keep the organization running.

Re: possible dissolving

Posted: Thu Oct 03, 2002 1:32 pm
by claudia
brenda, yours was the first website i found...i hope you will keep up your involvement. You do wonderful work.
claudia strobing

Re: possible dissolving

Posted: Thu Oct 03, 2002 4:34 pm
by NancyP
Brenda,

You have given such great service to our community. Thanks for all you and NBPEPA has done for all of us.

Nancy

Re: possible dissolving

Posted: Thu Oct 03, 2002 10:48 pm
by Joann in PA
Brenda you were the first contact I ever had with someone who had a child with a bpi when Joey was 2. Before that I felt so alone. You shared so much with me as far as information and direction. Even though we've never met...our family will always be grateful to you and count you as one of the many blessings God has sent us along this journey.

God's blessings to you Brenda!!

Re: possible dissolving

Posted: Fri Oct 04, 2002 1:16 am
by lizzyb
Brenda, this is terrible news.

You have been a great source of inspiration for me, even though you are probably unaware of that. I look at the NPEPA website at least once a week, and have sent many people there over these past few months who are looking for unbiased, honest and reliable information on all aspects of BPI.

Is there anything at all that I can do to help keep things going? Maybe your message here will galvanise people into action before they lose this precious resource; if anyone reading this has never looked at the NPEPA website, I urge you to do so now and offer some support.

Sincerely...Liz B

NBPEPA Web Site

Posted: Fri Oct 04, 2002 4:28 pm
by nbpepa
We will at least keep it as an archive. It gets a lot of hits daily. Not sure how we will go about this however. As time progresses, we will know more

Brenda Copeland-Moore
NBPEPA

recruiting volunteers

Posted: Fri Oct 04, 2002 4:30 pm
by nbpepa
It would be extremely difficult. We would need volunteers from the ground up. As in a new board of directors, people to do daily tasks, and etc...

Or some group to take over the Association.

Brenda Copeland-Moore
NBPEPA

Re: possible dissolving

Posted: Fri Oct 04, 2002 4:31 pm
by nbpepa
Claudia,
I am glad we were able to help. I hope we were able to help others as well.

Sincerely,
Brenda Copeland-Moore
NBPEPA