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Are the surgeons lying?
Posted: Thu Jun 28, 2012 9:06 pm
by borninseattle
Hi! I just found this website and learned for the first time that it may have been the doctors responsible for my paralysis when I was born 60 years ago! Anyway, I have lived pretty well with my somewhat crooked arm....have about 40% mobility....but it's pretty strong and I've had little complaint, until about 5 years ago when I became more active in strength aerobics, pilates and yoga. Then it really bothered me that I could not do a lot of the exercises and poses due to my arm. So I went to the orthopedic surgeon and asked him if it was possible to straighten my arm. They took x-rays and told me that the abnormal shape was due to "soft tissue" not bones and that it would not be possible. I'm still confused by that answer. I suppose I should just be very grateful my disability is not greater than it is. It is so wonderful to find a form for others hurt during birth.
Re: Are the surgeons lying?
Posted: Mon Jul 02, 2012 11:34 am
by Carolyn J
Hello borninseattle,
Welcome to our UBPN Family. I'm in Tacoma.
It would be more helpful to you to have an OBPI Specialist Evaluate you. Did the Orthopedist you saw know anything about Brachial Plexus aka Erb's Palsy Injuries? There are a number of different Orthopedists at UW and you can call each of the different clinics and ask that question. Good Luck.
We adults welcome specific questions too.
Carolyn J
LOBPI/74.
Re: Are the surgeons lying?
Posted: Fri Jul 13, 2012 12:24 pm
by hope16_05
If your contracture is due to soft tissue then you should be able to get your arm straighter over time through wearing an elbow extension splint at night. Ask your doctor for a prescription for occupational therapy and express your interest in straightening your bpi arm. They should be able to make a hard plastic splint for you that you can have readjusted over time.
Good luck!
Amy J 25 years old ROBPI from MN (also an occupational therapist)