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NIH study looking for volunteers for BPI study

Posted: Wed Jun 13, 2012 12:56 pm
by richinma2005
The NIH is conducting a study to examine and compare the function of the upper-limb joints of patients with brachial plexus birth palsy. Patients will be imaged with MRI to create and analyze 3D bone shape and muscle volume of the shoulder. Daily life tasks will be evaluated using 3D motion analysis of the upper-limb joints. In addition, a thorough physical assessment will be performed (range of motion, strength tests, and an upper-limb activity questionnaire).
The information will advance our understanding of patients with brachial plexus birth palsy and improve future patient-specific diagnosis and treatment of this problem.
If you can answer yes to all the following, please consider participating in this NIH study:

Are you between the ages of 5 and 25 years old?
Are you able to participate in an MRI study (e.g., pacemakers, not pregnant, etc...)?
Are you at least 6 months out from any shoulder or upper-limb surgery? Or Botulinum toxin injections?
Are you able to move your affected shoulder at least 30 degrees in front and 30 degrees to the side?

The study requires one to two visits (~ 2 hours each) to the NIH in Bethesda, Maryland. Participants will undergo ultrasound, MRI scanning, motion analysis and a physical assessment.
• Participants will be compensated.
• All study related tests will be provided at no cost.
• Every study participant receives personalized attention.
• This study does not provide clinical films for the participant.
Protocol coordinator: Sara Sadeghi. If there are any family’s who are interested in participating please have them contact Sarah
301-496-9422

Re: NIH study looking for volunteers for BPI study

Posted: Fri Jun 15, 2012 12:57 pm
by Carolyn J
HIP HIP HOOOORAY for another study of Teens and Adults with OBPI's!!!!!
Carolyn J
LOBPI/74 8-)