Going to Mayo

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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billvxii
Posts: 28
Joined: Fri Feb 03, 2012 9:06 pm
Injury Description, Date, extent, surgical intervention etc: Motorcycle accident Sept 15,2011. R BPI. R Scapula break. 4 Clavicular breaks. T4 & T8 vertebrae breaks.All ribs broken. 4 replaced with titanium ribs.351GRE8
Location: west of Phoenix,Az

Going to Mayo

Post by billvxii »

Got the call today. Yea!!
Anyway looking for people that have been, the one in Rochester, Mn.
Looking for hotel advice, good places to eat, whatever. I wont have time to scout so I figure if youve been there and found bad at least I can stay away from that. :D :D :D
Thanks,
Bill
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Going to Mayo

Post by jmar »

good luck bill. i hope you do VERY well.
prestonsmama

Re: Going to Mayo

Post by prestonsmama »

Bill,
You will be very pleased with the Mayo Clinic. That's where we have been taking our son. The docs there are the best in my opinion. We have always stayed at the Kahler Inn and Suites when going to the clinic. It's across the street from the clinic and they have a Caribou Coffee off the main lobby. Rooms are nice and staff is great. Plus, it's nice to be within walking distance. Other restaurants that are good- Chester's, they have wonderful burgers; Canadian Honker, everything is good there; and Jimmy Johns has really good subs and is off the lobby of the Kahler Inn also.
If you have any other questions, let me know.
Best of luck to you!
Carly
Fred4545
Posts: 27
Joined: Tue Nov 08, 2011 12:00 am
Injury Description, Date, extent, surgical intervention etc: 48 yr male with BPI from auto accident on 8/07/11. Suspected C5-T1 avulsion from early EMG but recently have flexed bicep. Had many serious and life-threatening injuries to deal with first, but am now doing much better. Just had nerve transfer surgery at Mayo by Dr. Skinner to reinnervate deltoid and tricep. Once this is working, we will move on to nerve/muscle transfer for dealing with my hand.
Location: Ohio

Re: Going to Mayo

Post by Fred4545 »

Bill,

When are you going? I got the word too and am going this Tuesday/Wed, March 6 & 7. I'm really excited about it.

Jeff
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Christopher
Posts: 845
Joined: Wed Jun 18, 2003 10:09 pm
Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02

Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed

BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.

Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)

"Do what you can, with what you have, where you are."
~Theodore Roosevelt
Location: Los Angeles, California USA

Re: Going to Mayo

Post by Christopher »

if you're getting surgery & family or guests are coming, this place is very convenient & close to St Mary's (where the slice & dice happens). You can usually bargain by calling for rates...

1121 2nd Street Southwest
Rochester, MN 55902
(507) 289-6600
staybridgesuites.com‎
Fred4545
Posts: 27
Joined: Tue Nov 08, 2011 12:00 am
Injury Description, Date, extent, surgical intervention etc: 48 yr male with BPI from auto accident on 8/07/11. Suspected C5-T1 avulsion from early EMG but recently have flexed bicep. Had many serious and life-threatening injuries to deal with first, but am now doing much better. Just had nerve transfer surgery at Mayo by Dr. Skinner to reinnervate deltoid and tricep. Once this is working, we will move on to nerve/muscle transfer for dealing with my hand.
Location: Ohio

Re: Going to Mayo

Post by Fred4545 »

Thanks Carly and Chris,

I'm not going for surgery yet...just diagnostic testing and team consultation, so am staying at the Kahler Inn and Suites this time. I do have to go to several locations like Gonda and St. Mary's depending on the test, so I will check out the options for a return visit.

Thanks for all the help. I'll let everyone know how things go.

Jeff
billvxii
Posts: 28
Joined: Fri Feb 03, 2012 9:06 pm
Injury Description, Date, extent, surgical intervention etc: Motorcycle accident Sept 15,2011. R BPI. R Scapula break. 4 Clavicular breaks. T4 & T8 vertebrae breaks.All ribs broken. 4 replaced with titanium ribs.351GRE8
Location: west of Phoenix,Az

Re: Going to Mayo

Post by billvxii »

Boy,
I cannnot tell you guys how much I appreciate the replies. It really helps to get feedback and information from people who have been in your shoes, or arms as the case is. I go May 1&2 for testing and consultation and hope to set surgury for ASAP.
Thanks again to all of you. I'll keep in touch,
Bill
Fred4545
Posts: 27
Joined: Tue Nov 08, 2011 12:00 am
Injury Description, Date, extent, surgical intervention etc: 48 yr male with BPI from auto accident on 8/07/11. Suspected C5-T1 avulsion from early EMG but recently have flexed bicep. Had many serious and life-threatening injuries to deal with first, but am now doing much better. Just had nerve transfer surgery at Mayo by Dr. Skinner to reinnervate deltoid and tricep. Once this is working, we will move on to nerve/muscle transfer for dealing with my hand.
Location: Ohio

Re: Going to Mayo

Post by Fred4545 »

Hi all,

Wow, what a week at Mayo for my wife and I. We went up there for what we thought was testing and consult only, but the whole team of Dr's Spinner, Bishop, Shin, and Reedy ended up spending a couple hours with me in evaluation and the gameplan they agreed to for me was to have a sural nerve transfer to reinnervate my tricep...and they said they could do it tomorrow (which was this past Thursday!!). So we scrambled to change flights and hotel reservations, and had the surgery. Right now I'm sitting in O'Hare airport waiting for my connecting flight home. I'm very sore but also very excited that I could get this Done literally in a flash. That is why I took a few days to update on my visit.

By the Way, now I've been to both St Louis and Mayo and for my experience, Mayo was far, far more complete. At Mayo, I had 2 MRI's, 2 EMG's and a 2 hour evaluation where there were literally 8 doctors in my room, including Spinner, Bishop, and Shin the whole time. And they gave me several options and paths, and we decided on one and got moving. At STL, they didn't run a single diagnostic check and didn't think they could help me with my tricep.

Now hopefully I get my tricep function back in 9 - 12 months, and then they will work on my hand. I already have regained bending my elbow and rotating my wrist so they are very optimistic.

I won't get into a debate on who is better...for me it was Mayo. I just hope that each of you gets the level of service and treatment that I received regardless of where you go.

Personally, I used the info on this site posted by Christopher and Angela to help guide and inform me, plus info from many others for hotels, food, getting around the clinic site, etc.

Let me know how I can help or answer any questions.

Regards - Jeff
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Going to Mayo

Post by jmar »

i am very happy you got to have your surgery and wish you the best. the best place to go is not where anyone else recommends, it is the best fit for YOU. good luck. :D
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